Neurodiversity-Affirming Intersectional Approaches That Target Public Policy: Moving the Focus From Changing Individuals to Changing Systems of Power

IF 3.5 1区 社会学 Q1 PSYCHOLOGY, SOCIAL
Monique Botha, Kristen Gillespie-Lynch, Morénike Giwa Onaiwu, Desiree R. Jones, So Yoon Kim, Rita Obeid
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引用次数: 0

Abstract

The neurodiversity movement challenges traditional deficit-oriented models of autism. However, inclusion efforts often prioritize individual attitudinal change over structural reform (e.g., policies and research practices) or exclude Autistic people with intersecting marginalized identities. Just research requires scientific inquiry to challenge the oppressive systems from which it emerges, and can sometimes reinforce, by directly addressing interlocking structures of power. Otherwise, research can fail to serve, and even perpetuate harm against, the most marginalized Neurodivergent people, including those with intellectual disabilities, nonspeaking individuals, and racial, ethnic, and gender minorities who remain underrepresented in broader research and policy generation. This special issue, Using Neurodiversity-Affirming Intersectional Approaches to Build More Equitable Societies and Shape Public Policy, therefore, seeks to challenge the systems of inequality dominant in autism research by uniting neurodiversity and intersectional frameworks with a focus on policy recommendations. In this introductory article to our special issue, we share the strategies we used to improve representation in our special issue and an overview of the papers in the special issue. We, the guest editors of the special issue, intentionally used our networks to seek contributions from scholars, advocates, and communities traditionally excluded from academic publishing, such as nonspeaking people and those from the Global South. This resulted in a special issue organized into three thematic sections: grounding neurodiversity in intersectionality to improve policy, addressing underrepresentation in research, advocacy, and publishing, and promoting systems-level and grassroots approaches to wellbeing. Across contributions, authors offer empirical and/or theoretical insights with actionable policy recommendations and demonstrate a range of approaches such as community-led methods, Open Scholarship practices, and decolonial and critical race frameworks that can shift power, improve measurement and access, and guide equitable resource allocation. Together, we call for a field-wide pivot from changing individuals to transforming systems, so that justice, participation, and self-determination are attainable for all neurominorities, especially those at multiply marginalized intersections.

神经多样性——确认以公共政策为目标的交叉方法:将焦点从改变个人转移到改变权力系统
神经多样性运动挑战了传统的自闭症缺陷导向模型。然而,包容性努力往往优先考虑个人态度的改变,而不是结构性改革(如政策和研究实践),或者排除具有交叉边缘身份的自闭症患者。公正的研究需要科学探究来挑战产生它的压迫性制度,有时还会通过直接解决相互关联的权力结构而得到加强。否则,研究可能无法为最边缘化的神经分化人群服务,甚至会对他们造成持续伤害,包括那些智障人士、不会说话的人,以及在更广泛的研究和政策制定中仍未被充分代表的种族、民族和性别少数群体。因此,本期特刊《利用神经多样性-肯定交叉方法建立更公平的社会和塑造公共政策》旨在通过将神经多样性和交叉框架结合起来,以政策建议为重点,挑战在自闭症研究中占主导地位的不平等制度。在这篇特刊的介绍性文章中,我们分享了我们用来提高特刊代表性的策略,并概述了特刊中的论文。作为特刊的特邀编辑,我们有意利用我们的网络向传统上被排除在学术出版之外的学者、倡导者和社区(如不说话的人和来自全球南方的人)寻求贡献。这导致了一个特别的问题,分为三个主题部分:在交叉性中建立神经多样性以改善政策,解决研究、宣传和出版中的代表性不足问题,以及促进系统级和基层的福利方法。在这些贡献中,作者提供了经验和/或理论见解,并提出了可操作的政策建议,并展示了一系列方法,如社区主导的方法、开放奖学金实践、非殖民化和关键的种族框架,这些方法可以转移权力、改善衡量和获取,并指导公平的资源分配。我们共同呼吁整个领域从改变个人转向改变系统,以便所有神经上的少数群体,特别是那些处于多个边缘交叉点的人都能实现正义、参与和自决。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
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来源期刊
CiteScore
9.70
自引率
7.70%
发文量
73
期刊介绍: Published for The Society for the Psychological Study of Social Issues (SPSSI), the Journal of Social Issues (JSI) brings behavioral and social science theory, empirical evidence, and practice to bear on human and social problems. Each issue of the journal focuses on a single topic - recent issues, for example, have addressed poverty, housing and health; privacy as a social and psychological concern; youth and violence; and the impact of social class on education.
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