Autistic Experiences of Applied Behavior Analysis (ABA): Toward Improved Autistic-Centered Supports

IF 3.5 1区 社会学 Q1 PSYCHOLOGY, SOCIAL
Nancy Sharon Marshall,  Russel,  Clara,  Damon,  Kendra
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Abstract

This study (extracted from a larger doctoral-level dissertation project) adopts a Critical Autism Studies (CAS) framework, and transformative mixed methods design, to examine lived experiences of Applied Behavior analysis (ABA) and to guide improvements in autism services. Autistic people have shared their lived experiences of the ways ABA has caused them harm due to the rigidly applied positive reinforcement and punishment procedures used to make them appear less autistic. Increasingly, ABA practitioners and researchers have responded by attempting to transform their practices to be more accepting of autistic ways of being. The four-staged methodology (surveys—interviews—analysis—participatory dissemination) responds to Milton's (2014) call for “interactional expertise” between non-autistic researchers and autistic people. The survey stage yielded 68 completed surveys from autistic people in Canada—22 respondents had received ABA and 46 had not but wished to express their views. Four participants who had received ABA—two with positive experiences and two with negative experiences—participated in semi-structured interviews and authorship of recommendations. Findings revealed diverse perspectives on ABA practices. Implications for policy and practice highlight the importance of authentically engaging with autistic communities to develop supports that are helpful and not harmful.

Abstract Image

Abstract Image

应用行为分析的自闭症经验:改善以自闭症为中心的支持
本研究(摘自一个更大的博士级论文项目)采用批判性自闭症研究(CAS)框架和变革性混合方法设计,以检验应用行为分析(ABA)的生活经验,并指导自闭症服务的改进。自闭症患者分享了他们的生活经历,ABA是如何给他们造成伤害的,因为ABA严格地应用了积极的强化和惩罚程序,使他们看起来不那么自闭。越来越多的ABA从业者和研究人员试图改变他们的做法,以更接受自闭症的存在方式。四阶段的方法(调查-访谈-分析-参与式传播)回应了弥尔顿(2014)对非自闭症研究人员和自闭症患者之间“互动专业知识”的呼吁。调查阶段共收集了68份来自加拿大自闭症人士的调查问卷,其中22名受访者已收到ABA, 46名受访者尚未收到ABA,但希望表达他们的意见。四名接受过aba治疗的参与者——两名有积极经历的,两名有消极经历的——参加了半结构化的访谈,并撰写了推荐信。调查结果揭示了ABA实践的不同观点。对政策和实践的启示突出了与自闭症社区真正接触以发展有益而无害的支持的重要性。
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来源期刊
CiteScore
9.70
自引率
7.70%
发文量
73
期刊介绍: Published for The Society for the Psychological Study of Social Issues (SPSSI), the Journal of Social Issues (JSI) brings behavioral and social science theory, empirical evidence, and practice to bear on human and social problems. Each issue of the journal focuses on a single topic - recent issues, for example, have addressed poverty, housing and health; privacy as a social and psychological concern; youth and violence; and the impact of social class on education.
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