[Gender-based analysis of experiences of caregivers for autistic infants based on a gender perspective].

Abstract

Upon receiving the diagnosis of autism, family dynamics are reconfigured based on caregiving, and gender stereotypes and roles become more visible, attributing a greater workload to women in caregiving activities. The objective of this study was to analyze the experiences of primary caregivers related to the care of autistic infants in Culiacán, Sinaloa, Mexico, from the perspective of gender as a critical category. This was a qualitative study with a descriptive-analytical and interpretive design, based on the life story as a source of the biographical method. Snowball sampling was used, and semi-structured interviews were applied to 10 primary caregivers. The interviews were coded using Atlas.ti software, and a thematic analysis of the findings was developed. Two themes were identified, the first being the conflicts of the parents regarding the diagnosis, which are generated from the different perceptions they had about motherhood and fatherhood. The second is the reconstruction of maternity and paternity in relation to disability, where overprotection is perceived as an anticipated reaction to the uncertain future of their autistic sons and daughters. The study indicated that it is important to acknowledge care as a practice that should be addressed by social policies.