Development and Psychometric Testing of the Social Participation Scale for Pediatric Cancer Patients.

IF 3.5 2区 医学 Q2 ONCOLOGY
Wang Mengjia, Liu Guo, Li Dan, Ji Jinglan, Ma Zilong, Wang Qing, Guo Xinyan, Zhang Ruixing
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引用次数: 0

Abstract

Objectives: Social participation plays a key role in the rehabilitation process, improving mental health, reducing isolation, and enhancing quality of life. Despite its importance, existing tools for assessing social participation in pediatric cancer patients are limited in comprehensiveness and specificity. The aim of this study was to develop and evaluate the psychometric properties of a Social Participation Scale for Pediatric Cancer Patients (SPS-PC).

Methods: Items were created after an extensive literature review and evaluated through expert consultation and a pilot study. A convenience sampling approach was employed to recruit 420 pediatric cancer patients from pediatric departments of three tertiary grade-A hospitals in Zhengzhou for psychometric testing of the scale. Item selection was based on item analysis, exploratory factor analysis was conducted to extract factors, and confirmatory factor analysis was used to assess structural validity.

Results: The final version of the SPS-PC includes 16 items across four dimensions: school participation, family participation, peer participation, and health management participation. The scale demonstrated excellent content and construct validity, with high internal consistency (Cronbach's α = 0.900) and strong reliability (test-retest reliability = 0.820). Exploratory and confirmatory factor analyses confirmed a robust four-factor structure.

Conclusion: The SPS-PC is a reliable and valid instrument for assessing social participation in pediatric cancer patients. The scale's comprehensive approach makes it an essential tool for clinical practice and research in pediatric oncology, contributing to the social reintegration of these children.

儿童癌症患者社会参与量表的编制与心理测试。
目标:社会参与在康复过程中发挥关键作用,改善心理健康,减少孤立,提高生活质量。尽管它很重要,但现有的评估儿童癌症患者社会参与的工具在全面性和特异性方面是有限的。本研究的目的是开发和评估儿童癌症患者社会参与量表(SPS-PC)的心理测量特征。方法:在广泛的文献回顾和专家咨询和试点研究评估后,创建项目。采用方便抽样的方法,从郑州市三所三级甲等医院儿科抽取420名儿童肿瘤患者进行心理测试。项目选择基于项目分析,探索性因子分析提取因子,验证性因子分析评估结构效度。结果:最终版本的SPS-PC包括学校参与、家庭参与、同伴参与和健康管理参与四个维度的16个项目。量表具有较好的内容和结构效度,具有较高的内部一致性(Cronbach’s α = 0.900)和较强的信度(重测信度= 0.820)。探索性和验证性因素分析证实了稳健的四因素结构。结论:SPS-PC是一种可靠、有效的评估儿童癌症患者社会参与的工具。该量表的综合方法使其成为儿科肿瘤学临床实践和研究的重要工具,有助于这些儿童重新融入社会。
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来源期刊
Psycho‐Oncology
Psycho‐Oncology 医学-心理学
CiteScore
6.30
自引率
8.30%
发文量
220
审稿时长
3-8 weeks
期刊介绍: Psycho-Oncology is concerned with the psychological, social, behavioral, and ethical aspects of cancer. This subspeciality addresses the two major psychological dimensions of cancer: the psychological responses of patients to cancer at all stages of the disease, and that of their families and caretakers; and the psychological, behavioral and social factors that may influence the disease process. Psycho-oncology is an area of multi-disciplinary interest and has boundaries with the major specialities in oncology: the clinical disciplines (surgery, medicine, pediatrics, radiotherapy), epidemiology, immunology, endocrinology, biology, pathology, bioethics, palliative care, rehabilitation medicine, clinical trials research and decision making, as well as psychiatry and psychology. This international journal is published twelve times a year and will consider contributions to research of clinical and theoretical interest. Topics covered are wide-ranging and relate to the psychosocial aspects of cancer and AIDS-related tumors, including: epidemiology, quality of life, palliative and supportive care, psychiatry, psychology, sociology, social work, nursing and educational issues. Special reviews are offered from time to time. There is a section reviewing recently published books. A society news section is available for the dissemination of information relating to meetings, conferences and other society-related topics. Summary proceedings of important national and international symposia falling within the aims of the journal are presented.
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