Evaluation of a Tailored, Community Dementia Program for the Caregiving Dyad.

Abstract

Background/objectives: Community programs tailored to the abilities of people living with dementia have the potential to address declines in physical and cognitive functioning while also making a positive difference in the daily lives of the caregiving dyad (person with living with dementia and their family caregivers). Unfortunately, these programs remain uncommon.

Methods: This study examined the potential of an 11-week tailored, community dementia program with the acceptability and sustainability of the program being evaluated. The program was held for 3 hr twice weekly, with the goal of facilitating social, cognitive, and physical engagement for the person living with dementia as well as providing a respite period and support group for the family caregivers.

Results: No significant changes were found for the caregiving dyad; however insightful information was captured during the focus groups with the family caregivers. From the family caregiver focus groups, four main themes emerged: (a) socialization for the caregiving dyad, (b) engagement and routine fostered by the program, (c) change during the program, and (d) benefits of the program for the family caregivers.

Conclusion: By using a multimodal design and combining social, cognitive, and physical activity components, the program has the potential for being a beneficial nonpharmacological intervention. Since the completion of the study, our community partner has continued to offer the program. Significance/Implications: The program shows promise for being able to be tailored to the abilities and needs of the caregiving dyad as well as being integrated into existing organizational structures of communities.