Barriers to care and the need for dental educational materials for the Lowe syndrome community: a survey of dentists.

IF 2.4 3区生物学 Q2 MULTIDISCIPLINARY SCIENCES

PeerJ Pub Date : 2025-10-08 eCollection Date: 2025-01-01 DOI:10.7717/peerj.20174

Adam Lowenstein, Matthew Finkelman, Jay Dalal, Crystal Smith, Glory Ogunyinka, David Tesini, Carlos Fernando Mourão

{"title":"Barriers to care and the need for dental educational materials for the Lowe syndrome community: a survey of dentists.","authors":"Adam Lowenstein, Matthew Finkelman, Jay Dalal, Crystal Smith, Glory Ogunyinka, David Tesini, Carlos Fernando Mourão","doi":"10.7717/peerj.20174","DOIUrl":null,"url":null,"abstract":"Background: This study aimed to assess dentists' experience in treating individuals with Lowe syndrome (LS), reasons they may be unable to provide dental care for individuals with LS, and perceptions of the need for educational materials tailored to the LS community regarding the dental setting.Methods: A link to an electronic Qualtrics survey addressing these topics was emailed to the Tufts University School of Dental Medicine Alumni Network listserv.Results: Data from 73 respondents were analyzed. Of the 57 who answered the question about having treated a patient with LS, three (5.3%) responded affirmatively. Among the 61 who answered why they might not be able to treat an individual with LS, the most common reasons were lack of experience treating children with special needs and not accepting medical assistance such as Medicaid/Medicare (both 31.1%). Of the 58 who responded to the item regarding the need for educational materials to support patients with LS in the dental setting, 47 (81.0%) agreed or strongly agreed.Conclusion: Substantial barriers to dental care exist for individuals with LS. Educational materials about the dental setting should be developed for the LS community.","PeriodicalId":19799,"journal":{"name":"PeerJ","volume":"13 ","pages":"e20174"},"PeriodicalIF":2.4000,"publicationDate":"2025-10-08","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC12515000/pdf/","citationCount":"0","resultStr":null,"platform":"Semanticscholar","paperid":null,"PeriodicalName":"PeerJ","FirstCategoryId":"99","ListUrlMain":"https://doi.org/10.7717/peerj.20174","RegionNum":3,"RegionCategory":"生物学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":null,"EPubDate":"2025/1/1 0:00:00","PubModel":"eCollection","JCR":"Q2","JCRName":"MULTIDISCIPLINARY SCIENCES","Score":null,"Total":0}

引用次数: 0

Abstract

Background: This study aimed to assess dentists' experience in treating individuals with Lowe syndrome (LS), reasons they may be unable to provide dental care for individuals with LS, and perceptions of the need for educational materials tailored to the LS community regarding the dental setting.

Methods: A link to an electronic Qualtrics survey addressing these topics was emailed to the Tufts University School of Dental Medicine Alumni Network listserv.

Results: Data from 73 respondents were analyzed. Of the 57 who answered the question about having treated a patient with LS, three (5.3%) responded affirmatively. Among the 61 who answered why they might not be able to treat an individual with LS, the most common reasons were lack of experience treating children with special needs and not accepting medical assistance such as Medicaid/Medicare (both 31.1%). Of the 58 who responded to the item regarding the need for educational materials to support patients with LS in the dental setting, 47 (81.0%) agreed or strongly agreed.

Conclusion: Substantial barriers to dental care exist for individuals with LS. Educational materials about the dental setting should be developed for the LS community.

查看原文本刊更多论文

护理障碍和对洛氏综合症社区牙科教育材料的需求：一项牙医调查。

背景：本研究旨在评估牙医治疗Lowe综合征（LS）患者的经验，他们可能无法为LS患者提供牙科护理的原因，以及对LS社区牙科环境量身定制的教育材料的需求的看法。方法：将电子质量调查的链接通过电子邮件发送到塔夫茨大学牙科医学院校友网络列表服务器。结果：对73名被调查者的数据进行了分析。在回答“是否治疗过LS患者”的问题的57人中，有3人（5.3%）做出了肯定的回答。在61名回答为什么他们可能无法治疗LS患者的人中，最常见的原因是缺乏治疗特殊需要儿童的经验，以及没有接受医疗援助，如医疗补助/医疗保险（均为31.1%）。在58名回答需要教育材料来支持LS患者在牙科设置的项目中，47人（81.0%）同意或强烈同意。结论：LS患者在牙科保健方面存在实质性障碍。应该为LS社区开发有关牙科设置的教育材料。

本文章由计算机程序翻译，如有差异，请以英文原文为准。

求助全文

约1分钟内获得全文求助全文

来源期刊

PeerJ MULTIDISCIPLINARY SCIENCES-

CiteScore

4.70

自引率

3.70%

发文量

1665

审稿时长

10 weeks

期刊介绍： PeerJ is an open access peer-reviewed scientific journal covering research in the biological and medical sciences. At PeerJ, authors take out a lifetime publication plan (for as little as $99) which allows them to publish articles in the journal for free, forever. PeerJ has 5 Nobel Prize Winners on the Board; they have won several industry and media awards; and they are widely recognized as being one of the most interesting recent developments in academic publishing.