Mothers' lived experiences of autistic adults' challenges, community support gaps, and pathways to independence - A phenomenological study.

Q4 Medicine
Hend Abdu Alnajjar, Amal Ibrahim Khalil, Neama Yousef Hantira
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引用次数: 0

Abstract

Objective: Aim: To investigate the obstacles encountered by Saudi mothers with adult autistic children in promoting autonomy and meaningful relationships. Additionally, it aimed to assess the available community resources and assistance for these mothers, as well as gather their recommendations for enhancing support systems.

Patients and methods: Materials and Methods: A phenomenological study design was used among 17 autistic mothers who were conveniently selected. The Focus group discussion guide included four open-ended questions to define mothers' challenges, as well as their coping and adaptation strategies for autistic adults' independent lives.

Results: Results: The thematic analysis highlighted six main themes and their subthemes. The subjects' response themes started with autism detection among children and went behind challenges and adaptation and coping mechanisms to create an independent living approach for autistic adults.

Conclusion: Conclusions: Mothers emphasized the need for comprehensive support systems, including early intervention, specialized resources, and trained caregiver. In addition, community engagement, acceptance and comprehensive family support are crucial.

自闭症成人母亲的生活经历:挑战、社区支持差距和独立途径——一项现象学研究。
目的:探讨沙特阿拉伯成年自闭症儿童的母亲在促进自主和有意义的关系方面遇到的障碍。此外,它的目的是评估现有的社区资源和对这些母亲的援助,并收集他们关于加强支助系统的建议。对象与方法:材料与方法:采用现象学研究设计,随机抽取17名自闭症母亲。焦点小组讨论指南包括四个开放式问题,以定义母亲面临的挑战,以及他们应对和适应自闭症成年人独立生活的策略。结果:结果:专题分析突出了六个主要主题及其副主题。受试者的反应主题从儿童自闭症检测开始,到挑战、适应和应对机制,以创造自闭症成年人的独立生活方式。结论:母亲们强调需要全面的支持系统,包括早期干预、专业资源和训练有素的护理人员。此外,社区参与、接受和全面的家庭支持也至关重要。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
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来源期刊
Wiadomosci lekarskie
Wiadomosci lekarskie Medicine-Medicine (all)
CiteScore
0.80
自引率
0.00%
发文量
482
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