A Protocol to examine the needs and experiences of autistic children/young people or children/young people with an intellectual disability when receiving support for mental health difficulties from child and adolescent mental health services.

Q1 Medicine

Wellcome Open Research Pub Date : 2025-06-25 eCollection Date: 2025-01-01 DOI:10.12688/wellcomeopenres.23597.2

Naomi Williams, Julie Taylor, Helena Tuomainen

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引用次数: 0

Abstract

Background: Studies indicate a high prevalence of co-occurring mental health conditions in autistic children and young people (CYP) and CYP with intellectual disability (ID), with approximately 25% experiencing mental health conditions compared to 17.2% of their non-autistic or non-ID counterparts. Delivering psychological therapies to autistic CYP and CYP with ID proves challenging due to inaccessible mental health provision. Further research is necessary to comprehend autistic CYP and CYP with ID and their parent/carers needs and experiences within mental health services and identify barriers to access and engagement. The perspectives of autistic CYP or CYP with ID and their parent/carers should be incorporated into treatment planning to enhance psychological therapies.

Methods: We will conduct between 1-3 Narrative Interviews per participant, lasting up to 1.5 hours per 'sitting'. Narrative interviews are a qualitative research method used to collect detailed and thorough information from individuals about their life events, insights, and perspectives. The study will involve CYP creating metaphors, allowing them to share their story. The study will use alternative methods of communication specific to their needs to allow the research team to explore the complexities of autistic CYP and CYP with ID needs and experiences. Additionally, parents/carers of autistic CYP and CYP with ID will tell their story of the needs and experiences of their child verbally.

Results: This study results will help to share the needs and experiences of the autistic CYP and CYP with ID, or a co-occurrence of both diagnoses and expose the barriers to accessing mental health services for autistic CYP and CYP with ID.

Conclusions: Recommendations will include guidance on decision-making for referrals, assessment, and treatment provision for autistic CYP and CYP with ID and co-occurring mental health difficulties.

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一项议定书，审查自闭症儿童/青少年或智力残疾儿童/青少年在接受儿童和青少年心理健康服务机构对心理健康困难的支持时的需求和经历。

背景：研究表明，在自闭症儿童和青少年（CYP）和智力残疾儿童和青少年（ID）中，共同发生的精神健康状况的患病率很高，大约25%的儿童和青少年患有精神健康状况，而非自闭症或非智力残疾的儿童和青少年（ID）中，这一比例为17.2%。由于无法获得心理健康服务，为自闭症和有ID的CYP提供心理治疗证明是具有挑战性的。进一步的研究是必要的，以了解自闭症CYP和有ID的CYP及其父母/照顾者在心理健康服务中的需求和经验，并确定获取和参与的障碍。在制定治疗计划时，应结合自闭症或有自我认知障碍的青少年及其父母/照顾者的观点，以加强心理治疗。方法：我们将对每位参与者进行1-3次叙述性访谈，每次“坐”的时间最长为1.5小时。叙述性访谈是一种定性研究方法，用于从个人收集有关其生活事件，见解和观点的详细和全面的信息。这项研究将包括CYP创造隐喻，让他们分享他们的故事。该研究将使用特定于他们需求的替代交流方法，使研究团队能够探索自闭症CYP和有ID需求和经历的CYP的复杂性。此外，自闭症CYP和有ID的CYP的父母/照顾者会用语言讲述他们孩子的需求和经历。结果：本研究的结果将有助于分享孤独症孤独症患者和孤独症孤独症患者的需求和经验，或两种诊断同时发生，并揭示孤独症孤独症患者和孤独症孤独症患者获得心理健康服务的障碍。结论：建议将包括对自闭症性早熟儿童和有ID的慢性早熟儿童的转诊决策、评估和治疗提供指导，并同时出现心理健康问题。

本文章由计算机程序翻译，如有差异，请以英文原文为准。

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来源期刊

Wellcome Open Research Biochemistry, Genetics and Molecular Biology-Biochemistry, Genetics and Molecular Biology (all)

CiteScore

5.50

自引率

0.00%

发文量

426

审稿时长

1 weeks

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