Understanding the Burden of Myocardial Infarction and Patient Preferences for Treatment: A Real-World Study Assessing Patients' Perspectives via an Online Survey.
M Cecilia Bahit, Serge Korjian, Gerald Chi, Yazan Daaboul, Alberto Castro Molina, Ginger Jiang, Christiana Dangas, Mudit Tandon, Deepak L Bhatt, Roxana Mehran, Harriette G C van Spall, Paul Nara, Alka Shaunik, Charles Michael Gibson
{"title":"Understanding the Burden of Myocardial Infarction and Patient Preferences for Treatment: A Real-World Study Assessing Patients' Perspectives via an Online Survey.","authors":"M Cecilia Bahit, Serge Korjian, Gerald Chi, Yazan Daaboul, Alberto Castro Molina, Ginger Jiang, Christiana Dangas, Mudit Tandon, Deepak L Bhatt, Roxana Mehran, Harriette G C van Spall, Paul Nara, Alka Shaunik, Charles Michael Gibson","doi":"10.17294/2330-0698.2146","DOIUrl":null,"url":null,"abstract":"<p><strong>Purpose: </strong>Myocardial infarction (MI) remains to be associated with a high risk of recurrent cardiovascular events and disease burden. This study assessed patient perspectives on the burden of disease and treatment in the first year post-MI.</p><p><strong>Methods: </strong>Data were collected via a self-administered online questionnaire posted on the Carenity patient platform in the United States (10/30/2022-12/30/2022). Only patients who had an MI in the prior year were eligible for inclusion.</p><p><strong>Results: </strong>A total of 151 patients completed the survey. The majority were men (69%), median age was 50 years, and 38% had an MI within the previous 90 days. Overall, post-MI complications were reported in 44% of the patients, including depression (23%), recurrent MI (7%), and stroke (7%). Follow-up care was provided by general/clinical cardiologists (67%), interventional cardiologists (38%), and general healthcare providers (59%). Most patients (80%) reported involvement in treatment decisions. The number of prescribed medications was considered the main contributor to post-MI treatment burden; approximately 42% of the patients found it tedious remembering to take their medications. The most commonly quoted post-MI treatment goal was recurrent MI risk reduction. Additionally, 73% of the patients considered improving quality of life to be a key goal. Overall, the patients' emotional well-being, physical well-being, and personal life were particularly impacted by MI. \"Stress/anxiety/fear\" was the most frequently reported emotion immediately post-MI, and one-third conveyed MI's negative impact on their employment status. MI impacted household finances in 74% of patients, with 38% losing income.</p><p><strong>Conclusions: </strong>MI places a substantial burden on patients. Understanding patient experiences post-MI may enhance patient-centered care.</p>","PeriodicalId":16724,"journal":{"name":"Journal of Patient-Centered Research and Reviews","volume":"12 4","pages":"234-244"},"PeriodicalIF":1.5000,"publicationDate":"2025-09-30","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC12503769/pdf/","citationCount":"0","resultStr":null,"platform":"Semanticscholar","paperid":null,"PeriodicalName":"Journal of Patient-Centered Research and Reviews","FirstCategoryId":"1085","ListUrlMain":"https://doi.org/10.17294/2330-0698.2146","RegionNum":0,"RegionCategory":null,"ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":null,"EPubDate":"2025/1/1 0:00:00","PubModel":"eCollection","JCR":"Q3","JCRName":"HEALTH CARE SCIENCES & SERVICES","Score":null,"Total":0}
引用次数: 0
Abstract
Purpose: Myocardial infarction (MI) remains to be associated with a high risk of recurrent cardiovascular events and disease burden. This study assessed patient perspectives on the burden of disease and treatment in the first year post-MI.
Methods: Data were collected via a self-administered online questionnaire posted on the Carenity patient platform in the United States (10/30/2022-12/30/2022). Only patients who had an MI in the prior year were eligible for inclusion.
Results: A total of 151 patients completed the survey. The majority were men (69%), median age was 50 years, and 38% had an MI within the previous 90 days. Overall, post-MI complications were reported in 44% of the patients, including depression (23%), recurrent MI (7%), and stroke (7%). Follow-up care was provided by general/clinical cardiologists (67%), interventional cardiologists (38%), and general healthcare providers (59%). Most patients (80%) reported involvement in treatment decisions. The number of prescribed medications was considered the main contributor to post-MI treatment burden; approximately 42% of the patients found it tedious remembering to take their medications. The most commonly quoted post-MI treatment goal was recurrent MI risk reduction. Additionally, 73% of the patients considered improving quality of life to be a key goal. Overall, the patients' emotional well-being, physical well-being, and personal life were particularly impacted by MI. "Stress/anxiety/fear" was the most frequently reported emotion immediately post-MI, and one-third conveyed MI's negative impact on their employment status. MI impacted household finances in 74% of patients, with 38% losing income.
Conclusions: MI places a substantial burden on patients. Understanding patient experiences post-MI may enhance patient-centered care.