Luana Karoline Castro Silva, Lidiane Andrea Oliveira Lima, Carla Sabariego, Luana Wendy de Oliveira Sousa, Shamyr Sulyvan de Castro
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引用次数: 0
Abstract
Background: The high prevalence of brain disorders and their impact on populations requires a better understanding of how affected individuals function daily. PARADISE-24, a tool based on the biopsychosocial model of the International Classification of Functioning, Disability, and Health (ICF), was designed to assess the impact of brain disorders. However, information on translations, psychometric properties, and its use remains limited.
Objective: This systematic review aims to provide an overview of PARADISE-24 translations, psychometric properties, and the brain disorders in which it has been applied as an assessment tool.
Methods: The PRISMA statement guidelines informed the reporting. A structured literature search was performed until January 2025 in PubMed, APA PsycINFO, Web of Science, and SCOPUS. Two reviewers independently retrieved studies. The studies' methodological quality and the quality of evidence were stated.
Results: From 919 identified studies, twelve articles were included. Five evaluated psychometric measures and seven used PARADISE-24 to identify impacts in individuals with multiple sclerosis, epilepsy, migraine, stroke, schizophrenia, Parkinson's disease, and people with substance use disorders. The results report high level of evidence in internal consistency, construct validity, and responsiveness, and considered moderate evidence available in reliability due to the doubtful methodological quality of the studies. Only one translated version was found.
Conclusion: Although the PARADISE-24 questionnaire is one of the first and only that assesses the impact of brain disorders based on the ICF, this questionnaire had only four measurement properties evaluated. More validation studies are needed, as well as encouragement for translating the PARADISE-24 into other languages.
背景:脑疾病的高患病率及其对人群的影响需要更好地了解受影响个体的日常功能。PARADISE-24是一个基于国际功能、残疾和健康分类(ICF)的生物心理社会模型的工具,旨在评估脑部疾病的影响。然而,关于翻译、心理测量特性及其应用的信息仍然有限。目的:本系统综述旨在概述PARADISE-24的翻译、心理测量特性以及作为评估工具在脑部疾病中的应用。方法:报告采用PRISMA声明指南。在PubMed, APA PsycINFO, Web of Science和SCOPUS中进行结构化文献检索,直到2025年1月。两位审稿人独立检索研究。对研究的方法学质量和证据质量进行了说明。结果:从919个确定的研究中,纳入了12篇文章。5个评估了心理测量方法,7个使用PARADISE-24来确定对多发性硬化症、癫痫、偏头痛、中风、精神分裂症、帕金森病和物质使用障碍患者的影响。结果报告了内部一致性、结构效度和响应性方面的高水平证据,并且由于研究的方法学质量值得怀疑,认为在可靠性方面可获得的证据中等。只找到一个翻译版本。结论:虽然PARADISE-24问卷是第一个也是唯一一个基于ICF评估脑部疾病影响的问卷,但该问卷仅评估了四个测量属性。需要更多的验证研究,并鼓励将PARADISE-24翻译成其他语言。
期刊介绍:
Neurological Sciences is intended to provide a medium for the communication of results and ideas in the field of neuroscience. The journal welcomes contributions in both the basic and clinical aspects of the neurosciences. The official language of the journal is English. Reports are published in the form of original articles, short communications, editorials, reviews and letters to the editor. Original articles present the results of experimental or clinical studies in the neurosciences, while short communications are succinct reports permitting the rapid publication of novel results. Original contributions may be submitted for the special sections History of Neurology, Health Care and Neurological Digressions - a forum for cultural topics related to the neurosciences. The journal also publishes correspondence book reviews, meeting reports and announcements.