Barriers and Facilitators in Proxy Decision-Making for Financial Support in Adolescent Idiopathic Scoliosis: A Qualitative Study of Family Caregivers Using the COM-B Model.
Sihui Liu, Kaili Hu, Huazhen Rui, Yi Gao, Xue Zhan
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引用次数: 0
Abstract
Purpose: This study aimed to explore the barriers and facilitators faced by family caregivers in proxy decision-Making for financial support in patients with adolescent idiopathic scoliosis (AIS).
Patients and methods: This qualitative study utilized the Capability, Opportunity, Motivation-Behavior (COM-B) model to examine the factors that influence family caregivers' proxy decision-Making regarding financial support for patients with AIS. Eighteen caregivers were interviewed using semi-structured interviews. The data were analyzed using MAXQDA software and Braun and Clarke's thematic analysis.
Results: The key facilitators identified included financial relief, trust in the legitimacy and reputation of charitable organizations, and family and social support. Barriers included lack of knowledge and practical skills, emotional and physical exhaustion, privacy concerns, particularly related to the patient's future educational opportunities, and the complexity of application procedures.
Conclusion: This study underscores the importance of addressing the barriers caregivers face, such as complex application processes and emotional stress, while enhancing facilitators like financial support and trust in organizations. Streamlining application procedures and improving transparency can enhance caregivers' ability to access financial resources, benefiting both patients and their families.
目的:本研究旨在探讨家庭照顾者在青少年特发性脊柱侧凸(AIS)患者经济支持代理决策中所面临的障碍和促进因素。患者与方法:本定性研究采用能力、机会、动机-行为(COM-B)模型来考察影响家庭照护者对AIS患者经济支持代理决策的因素。采用半结构化访谈对18名护理人员进行了访谈。使用MAXQDA软件和Braun and Clarke的专题分析对数据进行分析。结果:主要促进因素包括经济救济、对慈善组织合法性和声誉的信任以及家庭和社会支持。障碍包括缺乏知识和实践技能,情绪和身体疲惫,隐私问题,特别是与患者未来的教育机会有关,以及申请程序的复杂性。结论:本研究强调了解决护理人员面临的障碍(如复杂的申请流程和情绪压力)的重要性,同时加强财务支持和对组织的信任等促进因素。简化申请程序和提高透明度可以提高护理人员获得财务资源的能力,使患者及其家属受益。
期刊介绍:
Patient Preference and Adherence is an international, peer reviewed, open access journal that focuses on the growing importance of patient preference and adherence throughout the therapeutic continuum. The journal is characterized by the rapid reporting of reviews, original research, modeling and clinical studies across all therapeutic areas. Patient satisfaction, acceptability, quality of life, compliance, persistence and their role in developing new therapeutic modalities and compounds to optimize clinical outcomes for existing disease states are major areas of interest for the journal.
As of 1st April 2019, Patient Preference and Adherence will no longer consider meta-analyses for publication.