Parents' perspectives on the use of statistics to convey uncertainty in the NICU: a qualitative analysis.

IF 2.4 3区医学 Q2 OBSTETRICS & GYNECOLOGY

Journal of Perinatology Pub Date : 2025-09-29 DOI:10.1038/s41372-025-02439-2

Jeanne A Krick, Caitlin E Toffler, Nina Y Zhou, Marin Arnolds

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引用次数: 0

Abstract

Objective: Explore NICU parents' perspectives on how statistics are used to communicate prognostic uncertainty.

Study design: A secondary qualitative grounded theory analysis of semi-structured interviews with parents of current and past NICU patients focusing on their experience with prognostic uncertainty.

Results: Parents had varying opinions on the use of statistics. These views depended on many factors, including the motives for sharing statistics, their child's clinical status, their own emotional state, and their relationship with the provider communicating the uncertainty. Depending upon how statistics were utilized, parents felt they could be helpful and desired at times, but also harmful and counterproductive at others. Parents also shared recommendations on how statistics should be utilized in communicating uncertainty.

Conclusion: This study reveals an important parental perspective on communication for anyone caring for critically ill neonates. In sharing recommendations for communicating uncertainty with statistics, this study can help providers enhance relationships with parents.

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在新生儿重症监护室中，父母对使用统计数据传达不确定性的看法：一项定性分析。

目的：探讨新生儿重症监护病房家长对统计数据如何用于沟通预后不确定性的看法。研究设计：对当前和过去新生儿重症监护室患者的父母进行半结构化访谈，重点关注他们对预后不确定性的体验，进行二次定性扎根理论分析。结果：家长对统计的使用有不同的看法。这些观点取决于许多因素，包括分享统计数据的动机，他们孩子的临床状况，他们自己的情绪状态，以及他们与沟通不确定性的提供者的关系。根据统计数据的使用方式，父母们有时会觉得统计数据很有帮助，也很受欢迎，但有时也会有害，甚至适得其反。家长们还就如何利用统计数据传达不确定性提出了建议。结论：本研究揭示了父母对危重新生儿沟通的重要看法。通过分享与统计数据沟通不确定性的建议，本研究可以帮助提供者加强与父母的关系。

本文章由计算机程序翻译，如有差异，请以英文原文为准。

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来源期刊

Journal of Perinatology 医学-妇产科学

CiteScore

5.40

自引率

6.90%

发文量

284

审稿时长

3-8 weeks

期刊介绍： The Journal of Perinatology provides members of the perinatal/neonatal healthcare team with original information pertinent to improving maternal/fetal and neonatal care. We publish peer-reviewed clinical research articles, state-of-the art reviews, comments, quality improvement reports, and letters to the editor. Articles published in the Journal of Perinatology embrace the full scope of the specialty, including clinical, professional, political, administrative and educational aspects. The Journal also explores legal and ethical issues, neonatal technology and product development. The Journal’s audience includes all those that participate in perinatal/neonatal care, including, but not limited to neonatologists, perinatologists, perinatal epidemiologists, pediatricians and pediatric subspecialists, surgeons, neonatal and perinatal nurses, respiratory therapists, pharmacists, social workers, dieticians, speech and hearing experts, other allied health professionals, as well as subspecialists who participate in patient care including radiologists, laboratory medicine and pathologists.