Ryan J. Martin, Summer Bottini, Kait Gould, Ainsley Losh, Jaime Crowley-Zalaket, Meka N. McCammon, Jennifer R. Wolgemuth, Cynthia Anderson
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引用次数: 0
Abstract
Objectives
Autistic children and their families, especially those with co-occurring externalizing behavior, benefit from specialized behavioral healthcare services such as behavioral parent training (BPT). While past research has examined common barriers to families accessing care in a broad sense, relatively little is known about the unique experiences of families in the Appalachian region.
Methods
The present study employed qualitative methods to explore the experiences of seven parents and three community providers interested in telehealth-delivered BPT for their autistic children/clients. Interviews inquired about participants’ experiences with autism and accessing care in rural Appalachia.
Results & Conclusions
We found caregiver and provider perspectives aligned and centered around the multifaceted unmet needs of these families; barriers to accessing services in this region; factors that enable greater access, including telehealth; and the unique role that Appalachian culture plays in the provision of services. Preliminary recommendations for addressing the needs of autistic children and their families in rural Appalachia and directions for future research are discussed.
期刊介绍：
Advances in Neurodevelopmental Disorders publishes high-quality research in the broad area of neurodevelopmental disorders across the lifespan. Study participants may include individuals with:Intellectual and developmental disabilitiesGlobal developmental delayCommunication disordersLanguage disordersSpeech sound disordersChildhood-onset fluency disorders (e.g., stuttering)Social (e.g., pragmatic) communication disordersUnspecified communication disordersAutism spectrum disorder (ASD)Attention-deficit/hyperactivity disorder (ADHD), specified and unspecifiedSpecific learning disordersMotor disordersDevelopmental coordination disordersStereotypic movement disorderTic disorders, specified and unspecifiedOther neurodevelopmental disorders, specified and unspecifiedPapers may also include studies of participants with neurodegenerative disorders that lead to a decline in intellectual functioning, including Alzheimer’s disease, amyotrophic lateral sclerosis, Creutzfeldt-Jakob disease, vascular dementia, Lewy body dementia, frontotemporal dementia, corticobasal degeneration, Huntington’s disease, and progressive supranuclear palsy. The journal includes empirical, theoretical and review papers on a large variety of issues, populations, and domains, including but not limited to: diagnosis; incidence and prevalence; and educational, pharmacological, behavioral and cognitive behavioral, mindfulness, and psychosocial interventions across the life span. Animal models of basic research that inform the understanding and treatment of neurodevelopmental disorders are also welcomed. The journal is multidisciplinary and multi-theoretical, and encourages research from multiple specialties in the social sciences using quantitative and mixed-method research methodologies.
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