Non-regulated but involved: Exploring the experiences of unregulated support providers in MAiD service delivery in Canada.

Q3 Medicine

Healthcare Management Forum Pub Date : 2025-09-23 DOI:10.1177/08404704251363081

Clinton Ekaeze, Devidas Menon, Tania Stafinski

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引用次数: 0

Abstract

Since its legalization in 2016, Medical Assistance in Dying (MAiD) in Canada has undergone significant development, yet the roles of Unregulated Support Providers (USPs) remain largely overlooked in research and policy discussions. This study investigates the experiences of and challenges faced by USPs supporting patients choosing MAiD in Canada. We conducted semi-structured interviews with 19 USPs across Canada, recruited via purposive sampling. Thematic analysis was employed to explore experiences and identify patterns of service provision, collaboration, and barriers to care. USPs offer emotional, educational, and logistical support to patients and families navigating MAiD-related decisions. Despite their contributions, they face barriers, such as financial inaccessibility and lack of formal recognition. Participants advocated for greater integration into the formal healthcare system and regulation to enhance accountability, accessibility, and patient safety. USPs can play an important yet overlooked role in MAiD. Their formal recognition could enhance psychosocial care for patients.

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不受监管但参与：探索加拿大不受监管的MAiD服务提供支持提供者的经验。

自2016年合法化以来，加拿大的死亡医疗援助（MAiD）经历了重大发展，但在研究和政策讨论中，不受监管的支持提供者（USPs）的作用在很大程度上仍被忽视。本研究调查了USPs在加拿大支持患者选择MAiD的经验和面临的挑战。我们通过有目的的抽样，对加拿大的19位usp进行了半结构化访谈。采用专题分析来探索经验并确定服务提供、合作和护理障碍的模式。USPs为患者和家属提供情感、教育和后勤支持，帮助他们做出与maid相关的决定。尽管她们做出了贡献，但她们面临着经济困难和缺乏正式承认等障碍。与会者主张进一步纳入正规医疗保健系统和监管，以加强问责制、可及性和患者安全。USPs可以在MAiD中发挥重要但被忽视的作用。他们的正式认可可以加强对患者的心理社会护理。

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来源期刊

Healthcare Management Forum Medicine-Health Policy

CiteScore

3.60

自引率

0.00%

发文量

期刊介绍： Healthcare Management Forum is the official journal of the Canadian College of Health Service Executives. It is the only peer-reviewed journal that covers issues related to advances in health services management, theory and practice in a Canadian context. The quality of its contributors, the rigorous review process and the leading-edge topics make it truly unique!