Lung Health and Respiratory Syncytial Virus: Podcast of a Patient-Physician Discussion Based on Insights from a Patient Advisory Board Meeting.

IF 5.3 3区 医学 Q1 INFECTIOUS DISEASES
Bela Vatsa, Lisa McNeil, Peter Deussen, Steven Homewood, Steven Worsnip, Frithjof Kosfeld
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Abstract

An advisory board meeting was held with five participants living with chronic respiratory conditions or having experienced a severe episode of respiratory syncytial virus (RSV) infection, to understand the challenges faced by such individuals and their experiences with lung health. In this podcast, we relate the points discussed during that meeting, providing further reflections from a patient and a physician on awareness, the lived experience of RSV, the risks it poses to adults living with chronic respiratory conditions and healthcare system support in managing lung health. Experiences shared by participants illustrate how RSV and chronic respiratory conditions can impact many aspects of a person's life, beyond the acute illness, such as feelings of isolation. While many individuals are at risk of severe outcomes from RSV infection, the general population and healthcare practitioners (HCPs) are often unaware of the disease and its potential consequences in adults. Knowing the risk factors for severe RSV and exacerbation of underlying conditions, such as chronic obstructive pulmonary disease, asthma and cardiovascular diseases, could support physicians in discussing risks and preventive measures with their patients. This could help align patients' expectations of HCPs and the healthcare system with the care they receive by providing more guidance on the multifactorial management of their respiratory health. Discussions about the preferred sources of information identified patient groups as the most trustworthy source, followed by HCPs, who can play a key role in helping patients to identify reliable sources of information. Despite involving only a small group of people, the discussion provided valuable insights from participants which can raise awareness about the risks and impact of RSV on people's lives and empower healthcare professionals to better support their patients in managing their patients' lung health.

肺部健康和呼吸道合胞病毒:基于患者咨询委员会会议见解的医患讨论播客。
与五名患有慢性呼吸道疾病或经历过严重呼吸道合胞病毒(RSV)感染的与会者举行了一次咨询委员会会议,以了解这些人面临的挑战及其肺部健康经历。在本期播客中,我们将讨论会议期间讨论的要点,提供患者和医生对意识的进一步反思,RSV的生活经验,它对患有慢性呼吸道疾病的成年人造成的风险以及医疗保健系统在管理肺部健康方面的支持。与会者分享的经验表明,RSV和慢性呼吸道疾病如何影响一个人生活的许多方面,而不仅仅是急性疾病,比如孤立感。虽然许多人都有RSV感染的严重后果风险,但一般人群和保健医生(HCPs)往往不知道这种疾病及其在成人中的潜在后果。了解严重RSV的危险因素和潜在疾病的恶化,如慢性阻塞性肺病、哮喘和心血管疾病,可以帮助医生与患者讨论风险和预防措施。这可以通过提供更多关于呼吸健康多因素管理的指导,帮助患者将对HCPs和医疗保健系统的期望与他们所接受的护理相一致。关于首选信息来源的讨论确定了患者群体是最值得信赖的信息来源,其次是医护人员,他们可以在帮助患者确定可靠的信息来源方面发挥关键作用。尽管只涉及一小部分人,但讨论提供了参与者的宝贵见解,这些见解可以提高人们对呼吸道合胞病毒对人们生活的风险和影响的认识,并使医疗保健专业人员能够更好地支持患者管理患者的肺部健康。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
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来源期刊
Infectious Diseases and Therapy
Infectious Diseases and Therapy Medicine-Microbiology (medical)
CiteScore
8.60
自引率
1.90%
发文量
136
审稿时长
6 weeks
期刊介绍: Infectious Diseases and Therapy is an international, open access, peer-reviewed, rapid publication journal dedicated to the publication of high-quality clinical (all phases), observational, real-world, and health outcomes research around the discovery, development, and use of infectious disease therapies and interventions, including vaccines and devices. Studies relating to diagnostic products and diagnosis, pharmacoeconomics, public health, epidemiology, quality of life, and patient care, management, and education are also encouraged. Areas of focus include, but are not limited to, bacterial and fungal infections, viral infections (including HIV/AIDS and hepatitis), parasitological diseases, tuberculosis and other mycobacterial diseases, vaccinations and other interventions, and drug-resistance, chronic infections, epidemiology and tropical, emergent, pediatric, dermal and sexually-transmitted diseases.
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