C Bouleuc, L Thery, E Gilbert, A Burnod, C Laouisset, T Marchal, E Legrand, J C Mino
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引用次数: 0
Abstract
Background: In a day hospital stay, the palliative care (PC) delivery includes multi-disciplinary assessment of palliative care (PC) needs, with treating oncologist and supportive care professionals with a long time allocated for discussions with the patients and family. But little is known about the specificity of the relational work delivered by the PC team.
Aims: The aim of this study was to explore the nature of the relational work carried out at the PC day hospital from the perspective of the PC team.
Methods: This qualitative research used semi-structured open-ended interviews, conducted and analysed according to grounded theory. Twelve physicians and twelve nurses from PC team were interviewed over a period of 5 months to collect clinical cases.
Results: The analysis resulted in three main categories that explain the processes of relational work during PC Day Hospital sessions: (1) Patient engagement is necessary to increase relational work and gain patients' confidence. This involves initiating medical exchanges from the patient's point of view to obtain their participation; (2) Raising awareness of irreversible decline and approaching death using interactive relational work tactics, in line with oncologists when making decisions and announcing the discontinuation of cancer treatment; (3) Managing the final phase of the cancer trajectory requires negotiating home care terms and being aware of the family's influence.
Conclusions: PC day hospital in cancer centres allows a pluri-professional relational work including the oncologists which facilitates serious illness conversation, advance care planning and end-of-life care management for advanced cancer patients.
期刊介绍:
Psycho-Oncology is concerned with the psychological, social, behavioral, and ethical aspects of cancer. This subspeciality addresses the two major psychological dimensions of cancer: the psychological responses of patients to cancer at all stages of the disease, and that of their families and caretakers; and the psychological, behavioral and social factors that may influence the disease process. Psycho-oncology is an area of multi-disciplinary interest and has boundaries with the major specialities in oncology: the clinical disciplines (surgery, medicine, pediatrics, radiotherapy), epidemiology, immunology, endocrinology, biology, pathology, bioethics, palliative care, rehabilitation medicine, clinical trials research and decision making, as well as psychiatry and psychology.
This international journal is published twelve times a year and will consider contributions to research of clinical and theoretical interest. Topics covered are wide-ranging and relate to the psychosocial aspects of cancer and AIDS-related tumors, including: epidemiology, quality of life, palliative and supportive care, psychiatry, psychology, sociology, social work, nursing and educational issues.
Special reviews are offered from time to time. There is a section reviewing recently published books. A society news section is available for the dissemination of information relating to meetings, conferences and other society-related topics. Summary proceedings of important national and international symposia falling within the aims of the journal are presented.