Developing a Health Education Checklist for Healthcare Professionals to Ensure Treatment Adherence of Newly Diagnosed Young People Living with HIV: A Delphi Study.
Meishan Chen, Yi Wang, Liwen Jiang, Tingting Chen, Xiaoyu Song, Min Tian, Yanhua Chen, Jian Tang
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Abstract
Background: Young people living with HIV (YLWH) are a key population in global HIV prevention and control. YLWH often shows poor adherence to antiretroviral therapy (ART), with poor medication adherence, delayed initiation and frequent treatment interruption. This study aimed to develop a theory-based health education checklist to support ART adherence among newly diagnosed YLWH.
Methods: An initial pool of 41 items was generated through a literature review and the Protection Motivation Theory (PMT) framework, covering ART knowledge, coping strategies, psychosocial support, and behavioral skills. A structured health education checklist was then designed and refined through expert panel discussions and the Delphi method. Between November 2024 and January 2025, 17 experts from seven provinces in China participated in a two-round Delphi consultation. Experts assessed and revised the scientific rigor, importance, and feasibility of the proposed checklist. The expert authority coefficient and Kendall's coefficient of concordance were calculated to evaluate the consistency of expert opinions, leading to the development of a standardized checklist.
Results: The final checklist comprises 5 primary indicators, 10 secondary indicators, and 32 tertiary indicators. The expert authority coefficients for the two Delphi rounds were 0.867 and 0.905, respectively, the Kendall's coefficients of concordance were 0.621 and 0.716 (P < 0.001). The expert participation rates were 100% in the first round and 94.12% in the second round.
Conclusion: The health education checklist developed in this study demonstrates high scientific rigor and feasibility. It provides healthcare professionals with a structured tool to guide health education, which may support both short-term and long-term ART adherence among YLWH.
期刊介绍:
Patient Preference and Adherence is an international, peer reviewed, open access journal that focuses on the growing importance of patient preference and adherence throughout the therapeutic continuum. The journal is characterized by the rapid reporting of reviews, original research, modeling and clinical studies across all therapeutic areas. Patient satisfaction, acceptability, quality of life, compliance, persistence and their role in developing new therapeutic modalities and compounds to optimize clinical outcomes for existing disease states are major areas of interest for the journal.
As of 1st April 2019, Patient Preference and Adherence will no longer consider meta-analyses for publication.