Nutrition Management of Children With Central Nervous System Tumors: A Survey of Pediatric Oncology Dietitians in the United States.

Abstract

Purpose: Central nervous system (CNS) tumors include benign and malignant tumors of the brain and spinal cord. Nutrition risk for children with CNS tumors varies widely based on the diagnosis and treatment plan. Research supports proactive interventions for high-risk patients. However, assessment and intervention strategies vary widely between institutions, and the absence of nutrition management guidelines is a barrier to providing optimal care to these patients. Our group endeavored to survey experienced pediatric oncology dietitians throughout the United States regarding nutrition management practices and then measure agreement with practice recommendations for nutrition care.

Methods: Thirteen dietitians were recruited to participate in a virtual conference concerning nutrition practices in pediatric CNS patients. Two lead dietitians performed thematic analysis of the discussions and developed 16 practice recommendations from the panel. Participants were then invited to provide feedback on the practice recommendations before rating their level of agreement on a final version of the practice recommendations.

Results: Strong agreement (greater than 80% voting agree or strongly agree) was reached on 16/16 of the practice recommendations.

Conclusion: Appropriate nutrition care is gaining attention as an essential element of pediatric cancer therapy. These survey results can guide nutrition care for children with CNS tumors.