The first regional interdisciplinary paediatric palliative care (PPC) workshop for the Eastern Mediterranean Region: a groundbreaking collective step for PPC integration.

IF 1.3 Q4 ONCOLOGY
ecancermedicalscience Pub Date : 2025-07-17 eCollection Date: 2025-01-01 DOI:10.3332/ecancer.2025.1948
Rima Saad Rassam, Ryan R Lion, Siham Cherkaoui, Laila Hessissen, Ximena Garcia-Quintero, Lama Sayegh Najjar, Dolly Noun, Janane Hanna, Rana Yamout, Shahzadi Resham, Khaled Al Habaiba, Anwar Al-Nassan, Joe El-Khoury, Spandana Rayala, Qutaibah Alotaibi, Nahla Gafer, Giuseppe Troisi, Julia Downing, Suheir Rasul, Sima Jeha, Monnie Abraham, Michael J McNeil
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Abstract

Amidst the global disparities in providing Paediatric Palliative Care (PPC), the compounded realities in the Eastern Mediterranean region intensify the need for palliative care for children with cancer. This region hosts 12% of children needing PPC worldwide within limited specialised services, training and resources exacerbated by political instabilities. Immediate effective responses may reside in promoting interdisciplinary capacity-building combined with action planning among healthcare professionals, stakeholders and advocates for patients and their families. In response to these pressing needs, the First Regional Interdisciplinary PPC Workshop was held in-person in Rabat, Morocco on 6-8 November 2024, aiming to strengthen regional interdisciplinary healthcare professionals' capacity through training and collaborative action planning to improve PPC integration in cancer treatment. Eighty-five attendees representing 15 countries including regional healthcare professionals, international experts, foundation representatives and policymakers united in the commitment to promote PPC integration and enhance the quality of life for children with palliative care needs, particularly those with cancer living in this region. Over 3 days, participants engaged in training, discussions and action planning. Day one provided essential skills to deliver PPC at the patient care level (micro-level), day two discussed institutional implementation of PPC services (meso-level), day three tackled national and regional endeavours to promote PPC integration (macro-level). At the conclusion of the workshop, participants gained knowledge and confidence in various PPC skills. They shared their plans to establish PPC teams/units, apply symptom management and communication skills, train colleagues within their settings, conduct research and maintain networking to encourage collaboration opportunities. The workshop marked a pivotal step to deepen understanding of the PPC landscape and resources in the region. This impactful experience laid the foundations for different opportunities in practice, research, policy and advocacy to accelerate PPC integration in the Eastern Mediterranean region, fostering collective efforts to improve childhood cancer care globally.

Abstract Image

Abstract Image

东地中海区域首届跨学科儿科姑息治疗(PPC)区域讲习班:PPC一体化的开创性集体步骤。
在提供儿科姑息治疗(PPC)方面的全球差异中,东地中海区域的复杂现实加剧了对癌症儿童姑息治疗的需求。由于政治不稳定,在专业服务、培训和资源有限的情况下,该地区收容了全球12%需要PPC的儿童。可立即采取有效对策,促进跨学科能力建设,并结合保健专业人员、利益攸关方和患者及其家属倡导者的行动规划。为了应对这些迫切需求,首届区域跨学科PPC研讨会于2024年11月6日至8日在摩洛哥拉巴特亲自举行,旨在通过培训和协作行动计划加强区域跨学科卫生保健专业人员的能力,以改善PPC在癌症治疗中的整合。来自15个国家的85名与会者,包括区域医疗保健专业人员、国际专家、基金会代表和政策制定者,共同致力于促进PPC整合,提高有姑息治疗需求的儿童的生活质量,特别是生活在该地区的癌症患者。在3天的时间里,与会者进行了培训、讨论和行动规划。第一天提供了在患者护理层面(微观层面)提供PPC的基本技能,第二天讨论了PPC服务的机构实施(中观层面),第三天讨论了促进PPC整合的国家和区域努力(宏观层面)。工作坊结束后,参加者对各种PPC技巧有了更多的认识和信心。他们分享了建立PPC小组/单位的计划,应用症状管理和沟通技巧,在他们的环境中培训同事,进行研究和维护网络以鼓励合作机会。该研讨会标志着加深对该地区PPC景观和资源了解的关键一步。这一有影响力的经验为在实践、研究、政策和宣传方面创造不同机会奠定了基础,以加速东地中海区域PPC一体化,促进集体努力,改善全球儿童癌症护理。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
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来源期刊
CiteScore
3.80
自引率
5.60%
发文量
138
审稿时长
27 weeks
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