Non-Sedated Cannula Replacement in Home-Care Patients With Amyotrophic Lateral Sclerosis: Cost Reduction and Patient-Family Satisfaction Evaluation

Q4 Medicine
M.ª Antonia Gómez Mendieta , Ana Santiago Recuerda , Maria Varela Cerdeira , Baltasar Liebert Alvarez , Miguel Valdazo Alonso , Elena Corpa Rodríguez
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引用次数: 0

Abstract

This study describes a home-based tracheostomy tube replacement protocol for individuals diagnosed with amyotrophic lateral sclerosis (ALS) requiring invasive mechanical ventilation. Implemented between May 2020 and July 2024, the protocol was offered to 16 eligible patients, with 14 opting for home-based care under the supervision of the Carlos III/La Paz Hospital. Procedures were conducted without sedation by a multidisciplinary team, with the aim of maintaining patient safety and continuity of care. A total of 120 home-based replacements were performed, most without major complications or the need for emergency hospitalization. In comparison to hospital-based procedures, the home protocol was associated with an estimated cost reduction of approximately €340 per case, potentially resulting in annual savings of €10,200. Patients reported high satisfaction, noting decreased caregiver burden and improved perceived quality of care. While limited by patient selection criteria, these preliminary findings suggest that home-based tracheostomy care may be a feasible, safe, and cost-effective alternative for long-term management in ALS.
肌萎缩性侧索硬化症家庭护理患者的非镇静套管置换:降低成本和患者-家庭满意度评价
本研究描述了一种基于家庭的气管造口管更换方案,用于诊断为肌萎缩侧索硬化症(ALS)的个体,需要有创机械通气。该协议于2020年5月至2024年7月期间实施,向16名符合条件的患者提供了服务,其中14人选择在卡洛斯三世/拉巴斯医院的监督下接受家庭护理。手术过程由多学科团队进行,无镇静,目的是维护患者安全和护理的连续性。总共进行了120例家庭置换,大多数没有重大并发症或需要紧急住院治疗。与以医院为基础的治疗相比,家庭治疗方案每例的费用估计减少约340欧元,每年可能节省10 200欧元。患者报告了很高的满意度,注意到减轻了照顾者的负担,提高了护理的感知质量。虽然受患者选择标准的限制,但这些初步发现表明,家庭气管切开术治疗可能是ALS长期治疗的一种可行、安全、经济的选择。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
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来源期刊
Open Respiratory Archives
Open Respiratory Archives Medicine-Pulmonary and Respiratory Medicine
CiteScore
1.10
自引率
0.00%
发文量
58
审稿时长
51 days
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