Fertility Concerns and Information Needs and Preferences of Australian Women With Chronic Kidney Disease: An Exploratory Qualitative Study.

IF 3.5 2区医学 Q1 DEMOGRAPHY

Perspectives on Sexual and Reproductive Health Pub Date : 2025-09-01 Epub Date: 2025-07-14 DOI:10.1111/psrh.70027

Sara Holton, Craig Nelson, Elizabeth Manias, Bodil Rasmussen, Vicki Levidiotis

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引用次数: 0

Abstract

Objective: Pregnancy is associated with adverse maternal and fetal outcomes for women with chronic kidney disease (CKD). Yet few women with CKD report receiving information about pregnancy and often experience difficulties making informed childbearing decisions and optimizing pregnancy outcomes. The aim of this study was to identify the fertility and childbearing concerns and related information needs and preferences of women with CKD living in Australia.

Methods: We completed an exploratory qualitative study. Women with CKD, recruited from a public health service in metropolitan Melbourne, Australia, participated in an online discussion group hosted on WhatsApp. We analyzed the discussion group transcript for key findings.

Results: Participants (N = 8) reported wanting children but often had fewer children than desired due to concerns about the impact of pregnancy on their CKD and the possible impact of CKD on a pregnancy or their child, including their baby inheriting CKD, how CKD medications may affect their baby, and the potential effects of a kidney transplant. Participants found it difficult to access relevant, up-to-date information about CKD and pregnancy.

Conclusions: Women with CKD often have concerns about getting pregnant or having a baby but find it difficult to access information especially from their healthcare team. Women with CKD would benefit from relevant and current information provided at specific times such as before and after a kidney transplant or when considering pregnancy to assist them in making informed decisions and achieving their reproductive goals.

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澳大利亚慢性肾病妇女的生育问题、信息需求和偏好：一项探索性质的研究。

目的：妊娠与慢性肾脏疾病（CKD）妇女的不良母婴结局相关。然而，很少有CKD妇女报告收到有关妊娠的信息，并且经常在做出知情的生育决定和优化妊娠结果方面遇到困难。本研究的目的是确定生活在澳大利亚的CKD女性的生育和生育问题以及相关信息需求和偏好。方法：进行探索性定性研究。患有慢性肾病的女性从澳大利亚墨尔本大都会的一家公共卫生服务机构招募，参加了WhatsApp上的一个在线讨论组。我们分析了讨论组的主要发现。结果：参与者（N = 8）报告想要孩子，但由于担心怀孕对他们的CKD的影响以及CKD对怀孕或他们的孩子的可能影响，包括他们的孩子继承CKD， CKD药物如何影响他们的孩子，以及肾移植的潜在影响，他们的孩子往往比期望的要少。参与者发现很难获得有关CKD和怀孕的相关最新信息。结论：患有慢性肾病的妇女经常担心怀孕或生孩子，但发现很难获得信息，特别是从她们的医疗团队。患有CKD的女性将受益于在特定时间提供的相关和最新信息，例如肾移植前后或考虑怀孕时，以帮助她们做出明智的决定并实现其生殖目标。

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来源期刊

Perspectives on Sexual and Reproductive Health Multiple-

CiteScore

5.10

自引率

3.40%

发文量

期刊介绍： Perspectives on Sexual and Reproductive Health provides the latest peer-reviewed, policy-relevant research and analysis on sexual and reproductive health and rights in the United States and other developed countries. For more than four decades, Perspectives has offered unique insights into how reproductive health issues relate to one another; how they are affected by policies and programs; and their implications for individuals and societies. Published four times a year, Perspectives on Sexual and Reproductive Health includes original research, special reports and commentaries on the latest developments in the field of sexual and reproductive health, as well as staff-written summaries of recent findings in the field.