Beyond the iron gate: Therapeutic donation at Lifeblood for patients with haemochromatosis.

IF 1.7 4区医学 Q2 MEDICINE, GENERAL & INTERNAL

Australian Journal of General Practice Pub Date : 2025-09-01 DOI:10.31128/AJGP-07-24-7364

Peter J Bentley, Carley N Gemelli, Elizabeth Knight, Jan Maddern, Carol Jos, Justine O'Donovan, Athina Kakkos, Marijke Welvaert, Barbara M Masser, Rachel Thorpe

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Abstract

Background and objectives: Australian Red Cross Lifeblood (Lifeblood) provides therapeutic venesection for patients who meet evidence-based eligibility criteria. Many of these patients have iron overload due to hereditary haemochromatosis (HHC). This study aimed to gain knowledge into the demographic characteristics of donors with haemochromatosis and to investigate their knowledge, compliance and experiences with their condition.

Method: An online survey was sent to therapeutic donors who had provided at least one donation in the five years prior to December 2022. Data were analysed using descriptive statistics.

Results: HHC donors self-reported high compliance with their prescribed venesection schedules. They reported being very knowledgeable about HHC, with most attending Lifeblood as they know their blood will be used. Further, they reported their doctor had little difficulty referring them to Lifeblood.

Discussion: These findings will enable the development of more tailored communications with therapeutic donors to enhance their donation experience and potentially improve treatment compliance.

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铁门之外：血色素沉着症患者在Lifeblood的治疗性捐赠。

背景和目的：澳大利亚红十字会Lifeblood （Lifeblood）为符合循证资格标准的患者提供治疗性静脉切除。这些患者中的许多人由于遗传性血色素沉着病（HHC）而铁超载。本研究旨在了解血色素沉着症献血者的人口统计学特征，并调查他们对病情的了解、依从性和经验。方法：对在2022年12月之前的五年内至少提供过一次捐赠的治疗性献血者进行在线调查。数据分析采用描述性统计。结果：HHC献血者自我报告对其规定的静脉切除时间表的依从性很高。他们报告说他们对HHC非常了解，大多数人都参加了Lifeblood，因为他们知道他们的血液会被使用。此外，他们报告说，他们的医生在向他们推荐“生命之血”时几乎没有什么困难。讨论：这些发现将有助于与治疗性供体进行更有针对性的交流，以提高他们的捐赠体验，并有可能提高治疗依从性。

本文章由计算机程序翻译，如有差异，请以英文原文为准。

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来源期刊

Australian Journal of General Practice Medicine-Family Practice

CiteScore

2.80

自引率

4.50%

发文量

284

期刊介绍： The Australian Journal of General Practice (AJGP) aims to provide relevant, evidence-based, clearly articulated information to Australian general practitioners (GPs) to assist them in providing the highest quality patient care, applicable to the varied geographic and social contexts in which GPs work and to all GP roles as clinician, researcher, educator, practice team member and opinion leader. All articles are subject to peer review before they are accepted for publication.