[Numerical considerations for defining a rare disease in China].

Q4 Medicine

中华口腔医学杂志 Pub Date : 2025-09-09 DOI:10.3760/cma.j.cn112144-20250717-00272

S Yu, H Qiao, X Zhang

引用次数: 0

Abstract

Rare diseases have become an issue of public health concern globally. In China, two rare diseases lists have been released officially in 2018 and 2023, respectively. However, due to its importance in research, clinical management , therapeutic drug development and health security, we still need a clear definition of rare diseases in China. Considering the current actual condition of our country and our population size, we would suggest a prevalence of less than 1/10 000 to define a rare disease in China.

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[在中国定义罕见病的数值考虑]。

罕见病已成为全球关注的公共卫生问题。在中国，分别于2018年和2023年正式发布了两份罕见病清单。然而，由于罕见病在研究、临床管理、治疗药物开发和健康保障方面的重要性，我们仍然需要明确罕见病在中国的定义。考虑到我国目前的实际情况和我国的人口规模，我们建议在中国定义罕见病的标准是患病率低于万分之一。

本文章由计算机程序翻译，如有差异，请以英文原文为准。

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来源期刊

中华口腔医学杂志 Medicine-Medicine (all)

CiteScore

0.90

自引率

0.00%

发文量

9692

期刊介绍： Founded in August 1953, Chinese Journal of Stomatology is a monthly academic journal of stomatology published publicly at home and abroad, sponsored by the Chinese Medical Association and co-sponsored by the Chinese Stomatology Association. It mainly reports the leading scientific research results and clinical diagnosis and treatment experience in the field of oral medicine, as well as the basic theoretical research that has a guiding role in oral clinical practice and is closely combined with oral clinical practice. Chinese Journal of Over the years, Stomatology has been published in Medline, Scopus database, Toxicology Abstracts Database, Chemical Abstracts Database, American Cancer database, Russian Abstracts database, China Core Journal of Science and Technology, Peking University Core Journal, CSCD and other more than 20 important journals at home and abroad Physical medicine database and retrieval system included.