Bridging the Governance Gap: A Case for an Indigenous Jurisprudential Framework for Genomic and Biobanking Research in Nigeria.

IF 1.5 3区 哲学 Q2 ETHICS
O A Gbadegesin, S Akintola
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引用次数: 0

Abstract

Nigeria's governance of genomic and biobanking research is hindered by inadequate regulatory frameworks that fail to address critical ethical and legal issues, such as data sharing, genomic sovereignty, informed consent, and benefit sharing. These governance gaps compromise participant rights, undermine trust, and hinder the equitable management of genetic resources. This study proposes an Indigenous Jurisprudential Framework (IJF) that integrates customary law and stewardship principles to create a culturally relevant governance model for genomic and biobanking research. Customary law, which emphasizes communal ownership and collective decision-making, provides a culturally grounded foundation for research governance, while stewardship principles advocate for the responsible management and preservation of genetic resources. By merging these approaches, the IJF aims to enhance ethical oversight, ensure equitable benefit sharing, and rebuild trust between researchers and participants. The framework also seeks to mitigate the exploitation of genetic resources, strengthen Nigeria's position in global scientific collaborations, and promote sustainable development by aligning research practices with local values. This research, grounded in a systematic literature review, offers a practical, context-specific solution that bridges traditional values with contemporary ethical standards, addressing the governance challenges in Nigeria's genomic and biobanking research. The IJF not only provides a model for Nigeria but also offers insights for other countries grappling with similar governance issues, particularly in regions with pluralistic legal systems and rich cultural traditions.

弥合治理差距:尼日利亚基因组和生物银行研究的本土法学框架案例。
尼日利亚对基因组和生物银行研究的治理受到监管框架不足的阻碍,这些框架未能解决关键的伦理和法律问题,例如数据共享、基因组主权、知情同意和利益分享。这些治理差距损害了参与者的权利,破坏了信任,并阻碍了遗传资源的公平管理。本研究提出了一个土著法学框架(IJF),该框架整合了习惯法和管理原则,为基因组和生物银行研究创建了一个与文化相关的治理模型。习惯法强调共同所有权和集体决策,为研究治理提供了文化基础,而管理原则倡导负责任的遗传资源管理和保护。通过合并这些方法,IJF旨在加强伦理监督,确保公平的利益分享,并重建研究人员和参与者之间的信任。该框架还寻求减少对遗传资源的利用,加强尼日利亚在全球科学合作中的地位,并通过使研究实践与当地价值观保持一致来促进可持续发展。这项研究以系统的文献综述为基础,提供了一个实用的、针对具体情况的解决方案,将传统价值观与当代伦理标准联系起来,解决了尼日利亚基因组和生物银行研究中的治理挑战。IJF不仅为尼日利亚提供了一个模式,也为其他正在努力解决类似治理问题的国家提供了见解,特别是在拥有多元法律制度和丰富文化传统的地区。
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来源期刊
Journal of Bioethical Inquiry
Journal of Bioethical Inquiry 医学-医学:伦理
CiteScore
5.20
自引率
8.30%
发文量
67
审稿时长
>12 weeks
期刊介绍: The JBI welcomes both reports of empirical research and articles that increase theoretical understanding of medicine and health care, the health professions and the biological sciences. The JBI is also open to critical reflections on medicine and conventional bioethics, the nature of health, illness and disability, the sources of ethics, the nature of ethical communities, and possible implications of new developments in science and technology for social and cultural life and human identity. We welcome contributions from perspectives that are less commonly published in existing journals in the field and reports of empirical research studies using both qualitative and quantitative methodologies. The JBI accepts contributions from authors working in or across disciplines including – but not limited to – the following: -philosophy- bioethics- economics- social theory- law- public health and epidemiology- anthropology- psychology- feminism- gay and lesbian studies- linguistics and discourse analysis- cultural studies- disability studies- history- literature and literary studies- environmental sciences- theology and religious studies
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