Researcher and community partner perspectives on community-engaged research during the COVID-19 pandemic.

IF 2 Q3 MEDICINE, RESEARCH & EXPERIMENTAL
Journal of Clinical and Translational Science Pub Date : 2025-07-07 eCollection Date: 2025-01-01 DOI:10.1017/cts.2025.10090
Simone C Frank, Mary E Grewe, Milenka Jean-Baptiste, Alicia Bilheimer, Alexandra F Lightfoot, Laura Villa-Torres
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引用次数: 0

Abstract

Introduction: We sought to explore how the COVID-19 pandemic impacted community-engaged research (CEnR) from both researcher and community partner perspectives, identify challenges and facilitators affecting their experiences, and describe desired supports for CEnR during future health crises.

Methods: We conducted semi-structured, virtual interviews with ten researchers and eight partners who conducted or collaborated on CEnR during the COVID-19 pandemic. Interviews were recorded and transcribed for analysis. We analyzed the transcribed data thematically through an iterative process involving memoing, consensus coding, and reviewing memos and code reports to identify and describe key categories and themes.

Results: Challenges identified were related to wellbeing and personal circumstances, such as feeling burnt out, managing increased caregiving responsibilities, or concern about risk of illness; institutional barriers, such as inflexible and burdensome financial, regulatory, and administrative policies; and virtual engagement, such as distractions, limited Internet access, or difficulty forming relationships online. Facilitators fell into two categories. Foundational factors such as strong existing partnerships, funding, and project-specific circumstances were critical to facilitating CEnR activities. Strategy-based facilitators focused on overcoming challenges and included communication, flexibility, risk mitigation, and utilizing techniques to enhance virtual engagement. Desired supports included flexible funding, resources for navigating research during crises, and increased virtual engagement accessibility and guidance.

Conclusions: By better understanding challenges and facilitators affecting experiences of researchers and community partners during the COVID-19 pandemic, we can develop strategies and resources to better support CEnR partnerships during future crises.

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在COVID-19大流行期间,研究人员和社区合作伙伴对社区参与研究的看法。
前言:我们试图从研究人员和社区合作伙伴的角度探讨COVID-19大流行如何影响社区参与研究(CEnR),确定影响他们经验的挑战和促进因素,并描述在未来的健康危机中对CEnR的期望支持。方法:对新冠肺炎大流行期间开展或合作开展cnr的10名研究人员和8名合作伙伴进行半结构化虚拟访谈。访谈被记录下来并转录以供分析。我们通过涉及备忘录、共识编码、审查备忘录和代码报告的迭代过程,以确定和描述关键类别和主题,对转录的数据进行主题分析。结果:确定的挑战与健康和个人环境有关,例如感觉筋疲力尽,管理增加的照顾责任,或担心疾病风险;体制障碍,如缺乏灵活性和繁琐的金融、监管和行政政策;以及虚拟参与,比如分心、上网受限或难以在网上建立关系。促进者分为两类。诸如强大的现有伙伴关系、资金和项目特定环境等基础因素对于促进CEnR活动至关重要。基于战略的促进者侧重于克服挑战,包括沟通、灵活性、风险缓解和利用技术加强虚拟参与。期望的支持包括灵活的资金,在危机期间导航研究的资源,以及增加虚拟参与的可及性和指导。结论:通过更好地了解在2019冠状病毒病大流行期间影响研究人员和社区合作伙伴体验的挑战和促进因素,我们可以制定战略和资源,在未来危机期间更好地支持中心伙伴关系。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
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来源期刊
Journal of Clinical and Translational Science
Journal of Clinical and Translational Science MEDICINE, RESEARCH & EXPERIMENTAL-
CiteScore
2.80
自引率
26.90%
发文量
437
审稿时长
18 weeks
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