Overcoming language barriers in pediatric clinical research: A qualitative study of researchers' views

Q3 Medicine

Ethics, Medicine and Public Health Pub Date : 2025-01-01 DOI:10.1016/j.jemep.2025.101171

S. Chhina , S. Moreheart , J. Claydon , B. Udall , M. Sadarangani , H. Longstaff , A. Orth , Q. Doan

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引用次数: 0

Abstract

Background

Limited English proficiency (LEP) can act as a barrier to equitable access to pediatric clinical research participation. This study examined researchers' perspectives on challenges and opportunities for including patients and families with LEP.

Methods

Semi-structured interviews were conducted with 26 researchers and hospital leaders at two hospitals in British Columbia, Canada. Interviews explored experiences offering research opportunities to populations with LEP and perceived barriers and facilitators. Thematic analysis was used to analyze interview transcripts.

Results

Five themes emerged: 1) lack of translation/interpretation resources; 2) unclear best practices; 3) doubts about translation quality; 4) low prioritization; 5) facilitators. Barriers existed at institutional and individual levels.

Conclusion

A comprehensive approach is needed to support equitable participation of patients with LEP in pediatric health research, including increased funding, cultural competence training, community partnerships, and language-inclusive design. Recognizing and addressing multi-level barriers can promote fully representative and equitable research participation for populations with LEP.

查看原文本刊更多论文

克服儿科临床研究中的语言障碍：对研究者观点的定性研究

背景有限的英语水平（LEP）可能成为公平获得儿科临床研究参与的障碍。本研究考察了研究人员对包括LEP患者和家庭在内的挑战和机遇的看法。方法对加拿大不列颠哥伦比亚省两所医院的26名研究人员和医院领导进行半结构化访谈。访谈探讨了为LEP人群提供研究机会的经验，以及感知到的障碍和促进因素。访谈笔录采用专题分析。结果：1)翻译资源不足；2)最佳实践不明确；3)对翻译质量的质疑；4)优先级低；5)主持人。体制和个人两级都存在障碍。结论需要采取综合措施支持LEP患者公平参与儿科健康研究，包括增加资金、文化能力培训、社区合作和语言包容性设计。认识和解决多层次障碍可以促进LEP人群充分代表性和公平的研究参与。

本文章由计算机程序翻译，如有差异，请以英文原文为准。

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来源期刊

Ethics, Medicine and Public Health Medicine-Health Policy

CiteScore

2.20

自引率

0.00%

发文量

107

审稿时长

42 days

期刊介绍： This review aims to compare approaches to medical ethics and bioethics in two forms, Anglo-Saxon (Ethics, Medicine and Public Health) and French (Ethique, Médecine et Politiques Publiques). Thus, in their native languages, the authors will present research on the legitimacy of the practice and appreciation of the consequences of acts towards patients as compared to the limits acceptable by the community, as illustrated by the democratic debate.