Telehealth group parent training for children with autism spectrum disorder and behavioral difficulties: feasibility, acceptability and preliminary efficacy

IF 1.5 4区 医学 Q2 PSYCHIATRY
Imanol Setien-Ramos , Teresa Alonzo-Castillo , Aina García-Martínez , Jorge Lugo-Marín , María Martínez-Ramírez , Josep Antoni Ramos-Quiroga , Laura Gisbert-Gustemps
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引用次数: 0

Abstract

Background and objectives

Children with Autism Spectrum Disorder (ASD) frequently experience significant behavioral challenges that hinder adaptive functioning and increase caregiver stress. This study assesses the feasibility, acceptability, and preliminary efficacy of a telehealth-delivered group parent training program designed to address behavioral difficulties in children with ASD.

Method

An open-label, single-arm trial was conducted with children aged 3–12 years diagnosed with ASD and behavioral difficulties, recruited from a tertiary hospital’s autism care program. Program effectiveness was evaluated using parent-reported measures on their children and on themselves assessing behavior problems, parental stress, and quality of life. Data analysis included pre-post comparisons and follow-up assessments at 3 and 6 months.

Results

Twenty dyads parent-children were analyzed. Satisfaction with the program was moderate, with especially favorable feedback on the "planned ignoring" unit. Preferences for delivery mode and format varied, with suggestions to reduce the number of tasks and tailor content to individual needs. Significant reductions in irritability, lethargy, hyperactivity were observed immediately after treatment, with improvements in irritability and hyperactivity sustained at the 3- and 6-month follow-ups. Parental stress decreased significantly post-treatment but did not persist over time. Quality of life improved significantly compared to baseline, both immediately post-treatment and during follow-up evaluations.

Conclusions

The telehealth-delivered group parent training program demonstrated feasibility and moderate acceptability, with significant improvements in child behavior and caregiver quality of life. However, the reduction in parental stress was not sustained over time. These findings underscore the potential of telehealth-delivered group interventions for managing ASD-related behavioral issues and indicate areas for program refinement to enhance adherence and long-term effectiveness.
远程医疗团体家长训练对自闭症谱系障碍和行为困难儿童的可行性、可接受性和初步效果
背景和目的自闭症谱系障碍(ASD)儿童经常经历严重的行为挑战,这些挑战阻碍了适应功能并增加了照顾者的压力。本研究评估了远程医疗提供的小组家长培训计划的可行性、可接受性和初步效果,该计划旨在解决自闭症儿童的行为困难。方法进行一项开放标签单臂试验,从一家三级医院的自闭症护理项目中招募3-12岁被诊断为ASD和行为困难的儿童。通过父母对孩子和他们自己的行为问题、父母压力和生活质量的评估来评估项目的有效性。数据分析包括前后比较和3个月和6个月的随访评估。结果对20对父子进行了分析。对该计划的满意度是中等的,对“计划忽视”单元的反馈尤其有利。对于交付模式和格式的偏好各不相同,建议减少任务数量并根据个人需求定制内容。治疗后立即观察到易怒、嗜睡、多动明显减少,在3个月和6个月的随访中,易怒和多动持续改善。父母的压力在治疗后显著减少,但没有持续一段时间。治疗后和随访期间的生活质量与基线相比均有显著改善。结论远程医疗团体家长培训项目具有可行性和可接受性,在儿童行为和照顾者生活质量方面有显著改善。然而,父母压力的减少并没有随着时间的推移而持续。这些发现强调了远程医疗提供的群体干预在管理自闭症相关行为问题方面的潜力,并指出了改进项目的领域,以提高依从性和长期有效性。
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来源期刊
CiteScore
2.90
自引率
0.00%
发文量
40
审稿时长
43 days
期刊介绍: The European journal of psychiatry is a quarterly publication founded in 1986 and directed by Professor Seva until his death in 2004. It was originally intended to report “the scientific activity of European psychiatrists” and “to bring about a greater degree of communication” among them. However, “since scientific knowledge has no geographical or cultural boundaries, is open to contributions from all over the world”. These principles are maintained in the new stage of the journal, now expanded with the help of an American editor.
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