“The stroke has already happened. You can't undo what has happened” emotions, coping, and adjustment in the experiences of southeast Asian people living with stroke - A qualitative study

Abstract

Objective

People living with stroke (PLWS) must cope effectively to facilitate the ideal conditions for adjustment and rehabilitation. Cultural values can greatly shape how an individual may cope and adjust to these changes. Considering the absence of published literature documenting how PLWS cope in the local Singaporean context, it becomes crucial to explore the emotional dimensions and cultural factors that shape their experiences. This study aimed to delve into the emotional aspects of PLWS, elucidating the lived experiences and understanding their coping approaches for post-stroke adjustment.

Methods

This study used a qualitative phenomenological approach with semi-structured interviews in Singapore (February 2020–March 2022) among twelve first-stroke participants discussing life changes, emotions, and coping strategies post-stroke. Thematic analysis was conducted.

Results

Four main themes emerged: 1) Internal emotional experiences amidst adversity and uncertainty; 2) Relational experiences of dependency and external support; 3) Age-related differences in experiences of peer support; 4) The importance of self.

Conclusions

PLWS in Singapore face unique emotional challenges influenced by local cultural values, emphasizing self-responsibility and self-management. Younger individuals struggle with unmet social and employment needs, while older individuals experience fewer such issues. Enhancing mental health support, promoting self-management, and increasing employer awareness could improve emotional adjustment and coping in post-stroke recovery. Addressing both psychosocial and cultural factors through targeted interventions and policy initiatives could help prevent post-stroke-related medical conditions in Southeast Asia. A comprehensive approach integrating holistic healthcare, supportive workplace policies, and community-based resources may facilitate better post-stroke adjustment and, in turn, improve long-term health outcomes.