Autism paradigms in a developing country setting: Results and implications of a Zimbabwean study.

IF 1.5 Q4 HEALTH CARE SCIENCES & SERVICES
African Journal of Disability Pub Date : 2025-07-18 eCollection Date: 2025-01-01 DOI:10.4102/ajod.v14i0.1638
Jabulani Mpofu, Maximus M Sefotho
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引用次数: 0

Abstract

Background: Autism spectrum disorders (ASD) are an evolving concept in the neurodiversity community. There is a continuum of views ranging from biological to social models, of which the medical model views ASD as pathological rather than atypical. How people live with their diversity attributes may depend on how they understand their own diversity attribute.

Objectives: This study explored self-perceptions of young people with mild-to-moderate ASD within their cultural context.

Method: Participants included an equal number of males and females with mild-to-moderate ASD (five each). They participated in two focus group discussions on self-perceptions of life situations in young people with ASD and whether they are considered as neurodiversity or pathology paradigms. Data analysis was done using the thematic content analysis approach.

Results: Participants viewed ASD as: (1) a human neurological variation, (2) were not disordered, (3) had sense of friendship and belonging, and (4) had natural and normal social emotional development.

Conclusion: Young people with ASD perceive ASD from a neurodiversity approach. A neurodiversity approach to ASD is primarily a social justice movement aiming to end what proponents see as the default pathologisation of neurodivergence and promoting the acceptance and accommodation of human neurodiversity.

Contribution: This study enhances understanding of self-perceptions among young people with ASD in Zimbabwe, revealing challenges and strengths unique to their experiences. It may inform educators and policymakers, promoting inclusive practices and tailored interventions, ultimately fostering empowerment, acceptance, and improved quality of life for young people within this community.

发展中国家的自闭症范例:一项津巴布韦研究的结果和意义。
背景:自闭症谱系障碍(ASD)在神经多样性领域是一个不断发展的概念。从生物学模型到社会模型,有一系列的观点,其中医学模型认为自闭症谱系障碍是病理的,而不是非典型的。人们如何与自己的多样性属性共存,可能取决于他们如何理解自己的多样性属性。目的:本研究探讨轻至中度自闭症青少年在其文化背景下的自我认知。方法:参与者包括相同数量的患有轻度至中度ASD的男性和女性(各5人)。他们参加了两个焦点小组讨论,主题是自闭症年轻人对生活状况的自我认知,以及他们是否被视为神经多样性或病理范式。数据分析采用主题内容分析法。结果:参与者将ASD视为:(1)人类神经系统的变异,(2)没有紊乱,(3)有友谊和归属感,(4)有自然和正常的社会情感发展。结论:青少年ASD患者从神经多样性的角度感知ASD。采用神经多样性方法治疗自闭症谱系障碍主要是一项社会正义运动,旨在结束支持者所认为的默认神经分化病理,促进对人类神经多样性的接受和适应。贡献:本研究增强了对津巴布韦自闭症青少年自我认知的理解,揭示了他们经历的独特挑战和优势。它可以为教育工作者和政策制定者提供信息,促进包容性做法和量身定制的干预措施,最终促进社区内年轻人的赋权、接受和生活质量的提高。
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来源期刊
African Journal of Disability
African Journal of Disability HEALTH CARE SCIENCES & SERVICES-
CiteScore
2.10
自引率
5.90%
发文量
50
审稿时长
20 weeks
期刊介绍: The African Journal of Disability, the official journal of CRS, AfriNEAD and CEDRES, introduce and discuss issues and experiences relating to and supporting the act of better understanding the interfaces between disability, poverty and practices of exclusion and marginalisation. Its articles yield new insight into established human development practices, evaluate new educational techniques and disability research, examine current cultural and social discrimination, and bring serious critical analysis to bear on problems shared across the African continent. Emphasis is on all aspects of disability particularity in the developing African context. This includes, amongst others: -disability studies as an emerging field of public health enquiry -rehabilitation, including vocational and community-based rehabilitation -community development and medical issues related to disability and poverty -disability-related stigma and discrimination -inclusive education -legal, policy, human rights and advocacy issues related to disability -the role of arts and media in relation to disability -disability as part of global Sustainable Development Goals transformation agendas -disability and postcolonial issues -globalisation and cultural change in relation to disability -environmental and climate-related issues linked to disability -disability, diversity and intersections of identity -disability and the promotion of human development.
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