Participant satisfaction and directions for growth in online group speech rehabilitation for individuals with Parkinson's disease.

IF 1.9 4区 医学 Q3 AUDIOLOGY & SPEECH-LANGUAGE PATHOLOGY
Gemma Moya-Galé
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Abstract

Purpose: With increased access to telehealth platforms and considering the heterogeneity of Parkinson's disease, understanding the contributors of patients' satisfaction with online group speech rehabilitation programs becomes essential for patient retention and adherence with continuous practice. The purpose of this study was to examine elements of an existing online group speech treatment program that contribute to participant satisfaction and determine patient-centred considerations for further growth.

Method: Ten individuals with Parkinson's disease enrolled in Speech for PD, an online university- and community-based program, participated in focus groups. The semi-structured interviews were video-recorded and transcribed. Data were analysed qualitatively following reflexive thematic analysis.

Result: Three themes were constructed: The importance and power of social connectedness, voice and cognitive-linguistic exercises as essential elements, and recommendations for growth; which emphasised the role of biofeedback and self-management techniques, as well as continued practice and in-person social gatherings.

Conclusion: Online group speech treatment programs may significantly contribute to increased social connectedness in individuals with Parkinson's disease. Participant satisfaction may also be enhanced through targeting not only the reported voice and speech deficits in Parkinson's disease but also cognitive-linguistic skills in group format. Elements of success and considerations for growth of an existing program, Speech for PD, are discussed.

帕金森病患者网络群体言语康复的参与者满意度及发展方向
目的:随着远程医疗平台的增加,考虑到帕金森病的异质性,了解患者对在线群体语言康复计划满意度的影响因素对于患者保留和坚持持续实践至关重要。本研究的目的是检查现有的在线群体言语治疗项目中有助于参与者满意度的因素,并确定进一步发展的以患者为中心的考虑因素。方法:10名帕金森氏症患者参加了一个在线大学和社区项目——言语治疗帕金森氏症。这些半结构化的采访被录像和转录。根据反身性专题分析对数据进行定性分析。结果:构建了三个主题:社会联系的重要性和力量,声音和认知语言练习作为基本要素,以及成长建议;它强调了生物反馈和自我管理技术的作用,以及持续的实践和面对面的社交聚会。结论:网络群体语言治疗方案可能显著促进帕金森病患者的社会联系。参与者满意度也可以通过不仅针对帕金森病的语音和语言缺陷,还针对群体形式的认知语言技能来提高。本文讨论了现有PD演讲项目的成功要素和发展考虑。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
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来源期刊
International Journal of Speech-Language Pathology
International Journal of Speech-Language Pathology AUDIOLOGY & SPEECH-LANGUAGE PATHOLOGY-REHABILITATION
CiteScore
3.10
自引率
16.70%
发文量
73
审稿时长
>12 weeks
期刊介绍: International Journal of Speech-Language Pathology is an international journal which promotes discussion on a broad range of current clinical and theoretical issues. Submissions may include experimental, review and theoretical discussion papers, with studies from either quantitative and/or qualitative frameworks. Articles may relate to any area of child or adult communication or dysphagia, furthering knowledge on issues related to etiology, assessment, diagnosis, intervention, or theoretical frameworks. Articles can be accompanied by supplementary audio and video files that will be uploaded to the journal’s website. Special issues on contemporary topics are published at least once a year. A scientific forum is included in many issues, where a topic is debated by invited international experts.
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