Next Step, Adulthood: The Role of Nurse Navigators in Supporting the Transition of Neurodivergent Youth from Pediatric to Adult Health Services in Canada.

Abstract

In Canada, 7% of youth 15-24 identify as living with neurodevelopmental conditions or intellectual disabilities, such as autism spectrum disorder or attention deficit disorder. These youth face significant challenges when transitioning from pediatric to adult healthcare services. Fragmented systems, diminished support, and increased health vulnerabilities mark these transitions. Adult healthcare systems often lack the coordinated, family-centered approach of pediatric care, resulting in care gaps, mental health risks, and poor health outcomes. This commentary argues that nurse navigators offer a practical, evidence-informed, and ethically grounded solution to improve transitional care. Drawing on successful models in oncology care, the nurse navigator role can bridge service silos, advocate for inclusive care, and support youth and families during this critical life stage. Despite systemic barriers such as workforce shortages and inconsistent policy implementation, the integration of nurse navigators into Canadian healthcare frameworks represents a necessary step toward equitable, person-centered transitional care. This paper calls for national investment in a scalable navigation model tailored to the needs of neurodivergent youth and their families, which aligns with Canada's legislative commitments to accessibility, inclusion, and health equity.