The Decision-Making Experience of Self-Management Behaviors in Home Peritoneal Dialysis for Patients with Diabetic Nephropathy: A Qualitative Study Using the Theory of Planned Behavior.
Zihao Song, Yuping Xiao, Yanjin Su, Gangxin Qin, Jinxin Yang
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引用次数: 0
Abstract
Purpose: Self-management among diabetic kidney disease(DKD) patients receiving home peritoneal dialysis(PD) remains a significant challenge, warranting further exploration. In this study, the Theory of Planned Behavior (TPB) was used to clarify patients' decision-making processes and understand the reasons for adhering to and changing behaviors.
Methods: Semi-structured interviews were conducted with 16 DKD patients who were undergoing follow-up and receiving home PD. The TPB was applied to formulate the interview themes and provide information for the Interpretative Phenomenological Analysis (IPA) method used.
Results: A total of 3 themes and 7 sub-themes were summarized, namely attitude towards behavior, where physical and mental perception affects the decision-making attitude (the positive feedback of improved physical function strengthens the decision-making attitude; the two-way influence of emotions catalyzes the decision-making attitude); subjective norm, where social factors drive the decision-making belief (the behavioral outcomes of peers transform the decision-making belief; the continuity of medical and nursing services consolidates the decision-making belief; the motivation of social feedback stimulates the decision-making belief); perceived behavioral control, where self-perception influences the decision-making intention (positive self-efficacy motivates the decision-making intention; the limitation of external resources restricts the decision-making intention).
Conclusion: For the management of home PD in patients with DKD, efforts can be made to improve patients' decision-making in self-management of home PD by strengthening the positive feedback of psychological experiences in behavioral decision-making, exploring digital peer support platforms and social support networks for such patients to improve the mechanism of patients' active participation in decision-making within social support networks, and improving the community support system from multiple dimensions such as incorporating relevant policies into assessment criteria, coordinating funds through multiple channels, enhancing the capabilities of community medical and nursing teams, and encouraging doctor-patient shared decision-making, thereby exploring and constructing a community assistance model for the management of home PD in patients with DKD.
目的:接受家庭腹膜透析(PD)的糖尿病肾病(DKD)患者的自我管理仍然是一个重大挑战,需要进一步探索。本研究运用计划行为理论(Theory of Planned Behavior, TPB)来厘清患者的决策过程,了解患者坚持和改变行为的原因。方法:对16例接受家庭PD随访的DKD患者进行半结构化访谈。TPB用于制定访谈主题,并为所使用的解释现象学分析(IPA)方法提供信息。结果:共归纳出3个主题和7个子主题,即对行为的态度,其中身心感知影响决策态度(身体功能改善的积极反馈强化决策态度;情绪的双向影响催化决策态度);主观规范,社会因素驱动决策信念(同伴的行为结果改变决策信念;医疗护理服务的连续性巩固了决策信念;社会反馈动机刺激决策信念);感知行为控制,自我感知影响决策意图(积极的自我效能感激励决策意图;外部资源的有限性制约了决策意愿)。结论:对于DKD患者家庭PD的管理,可以通过加强行为决策中心理体验的正反馈,探索DKD患者的数字化同伴支持平台和社会支持网络,提高患者在家庭PD自我管理中的决策能力,完善患者在社会支持网络中积极参与决策的机制。从将相关政策纳入考核标准、多渠道统筹资金、提升社区医疗护理团队能力、鼓励医患共同决策等多个维度完善社区支持体系,探索构建DKD患者家庭PD管理的社区援助模式。
期刊介绍:
Patient Preference and Adherence is an international, peer reviewed, open access journal that focuses on the growing importance of patient preference and adherence throughout the therapeutic continuum. The journal is characterized by the rapid reporting of reviews, original research, modeling and clinical studies across all therapeutic areas. Patient satisfaction, acceptability, quality of life, compliance, persistence and their role in developing new therapeutic modalities and compounds to optimize clinical outcomes for existing disease states are major areas of interest for the journal.
As of 1st April 2019, Patient Preference and Adherence will no longer consider meta-analyses for publication.