Exploration of Psychosocial Issues of Parents in Pediatric Oncology.

IF 0.8 4区 医学 Q4 HEMATOLOGY
Joel Mathew Jose, Gautam Gawali
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引用次数: 0

Abstract

Pediatric cancer not only affects the child but also casts a profound shadow on their families, entangling them in emotional turmoil, financial strain, and disruptions to daily life. Although the psychosocial challenges faced by parents of children with cancer are extensively documented, there is a significant gap in understanding how these needs are addressed. This research aims to bridge this void by delving into the psychosocial issues experienced by these parents. Existing literature highlights the psychological distress, financial hardship, and social isolation that parents endure. Stress, anxiety, depression, guilt, and post-traumatic stress disorder (PTSD) emerge as pervasive issues. Parents often grapple with stress stemming from prognosis uncertainty, financial burdens, and the emotional toll of caregiving. Anxiety manifests through constant worry and sleep disturbances, whereas depression brings persistent sadness and appetite changes. Guilt arises from perceived responsibility for the illness, and PTSD symptoms include vivid flashbacks and hypervigilance. These psychosocial issues significantly impact parents' quality of life, leading to sleep disturbances, strained relationships, and compromised self-care. Interventions such as individual and group therapy, along with support groups, play a crucial role in equipping parents with coping skills and stress management strategies. In conclusion, comprehensive support for parents of children with cancer should address emotional distress, practical caregiving, and provide information about the child's diagnosis and treatment. Acknowledging the multifaceted impact of cancer on the family, this research underscores the necessity for tailored interventions to navigate the emotional complexities of parenting and foster resilience amidst adversity.

儿童肿瘤患者家长心理社会问题的探讨。
儿童癌症不仅影响儿童,也给他们的家庭蒙上了深刻的阴影,使他们陷入情绪动荡、经济紧张和日常生活中断之中。虽然癌症儿童的父母所面临的社会心理挑战有广泛的记录,但在了解如何满足这些需求方面存在重大差距。这项研究旨在通过深入研究这些父母所经历的社会心理问题来弥合这一空白。现有文献强调了父母所承受的心理困扰、经济困难和社会孤立。压力、焦虑、抑郁、内疚和创伤后应激障碍(PTSD)成为普遍存在的问题。父母经常与来自预后不确定性、经济负担和照顾的情感代价的压力作斗争。焦虑表现为持续的担忧和睡眠障碍,而抑郁则带来持续的悲伤和食欲变化。内疚来自于对疾病的责任认知,创伤后应激障碍的症状包括生动的闪回和过度警惕。这些社会心理问题严重影响父母的生活质量,导致睡眠障碍、关系紧张和自我照顾受损。干预措施,如个人和团体治疗,以及支持团体,在为父母提供应对技能和压力管理策略方面发挥着至关重要的作用。总之,对患有癌症的孩子的父母的全面支持应该解决情绪困扰,实际的照顾,并提供关于孩子的诊断和治疗的信息。承认癌症对家庭的多方面影响,这项研究强调了有必要采取量身定制的干预措施,以应对养育子女的情感复杂性,并在逆境中培养韧性。
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来源期刊
CiteScore
1.90
自引率
8.30%
发文量
415
审稿时长
2.5 months
期刊介绍: ​Journal of Pediatric Hematology/Oncology (JPHO) reports on major advances in the diagnosis and treatment of cancer and blood diseases in children. The journal publishes original research, commentaries, historical insights, and clinical and laboratory observations.
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