Impact of Family-Centred Continuity of Care on Depression, Anxiety, Self-Esteem, and Quality of Life in Children With Leukemia.

Abstract

Aims/Background Leukemia is the most prevalent pediatric malignancy and has a significant impact on the psychological, emotional well-being, and quality of life of affected children. This study aimed to evaluate the effects of family-centred continuity of care (FCCC) on the psychological state, self-esteem, and quality of life in children with leukemia. Methods A retrospective analysis was conducted on 243 pediatric leukemia patients admitted to the Fourth Hospital of Hebei Medical University between January 2019 and December 2022. Patients were divided into two groups: Routine care (n = 135), who received standard hospital care, and home care (n = 108), who received FCCC. Data were collected and analysed using the Self-Esteem Scale (SES), Screen for Child Anxiety Related Emotional Disorders (SCARED), Depression Self-Rating Scale for Children (DSRSC), and Pediatric Quality of Life Inventory Multidimensional Fatigue Scale (PedsQL MFS). Results Post-intervention, the home care group demonstrated significant improvements in self-management, emotional and mental health functioning, and physical and social functioning (p < 0.05). The group also demonstrated decreased depression, enhanced self-esteem, improved quality of life, and reduced anxiety levels, indicating the efficacy of FCCC. Conclusion FCCC significantly enhances psychological well-being and quality of life in pediatric leukemia patients by integrating family members into the care process and offering emotional support and empowerment.