[Fathers and Their Adult Autistic Sons. An Interpretative Phenomenological Analysis of a Lifelong Experience].

Abstract

Introduction: Autism is a unique pathway of human development, rooted in the atypical development and functioning of the neurocognitive system. Its lifelong nature affects not only the individual but also the lives of family members. Although an increasing number of studies address the experiences of parents raising autistic children, the fathers' perspective - particularly in the context of adult autistic children - remains underexplored. This study aims to explore the experiences and meaning-making processes of fathers raising autistic children, from early childhood through adulthood.

Methods: This qualitative study involved semi-structured interviews with ten fathers whose sons had been diagnosed with autism spectrum disorder and had reached the age of 18. The interview data were analysed using the method of Interpretative Phenomenological Analysis (IPA).

Results: Four main group experiential themes were identified, revealing experiences that deeply influenced participants' parental roles and identities: (1) Dual control: A revolving cycle around losing and regaining control; (2) Crossing boundaries: accep ting and adapting; (3) Being in the world as a father: experiences of eternality and liminality; and (4) Personal growth through pervading experience.

Conclusion: Fathers' experiences were fundamentally shaped by the unpredictability of the future and the lack of systemic support. Our findings may inform the development of support services that are sensitively attuned to the specific needs of fathers raising autistic children.