Quality of Life and Mental Health in Caregivers of Children With Down Syndrome and Sleep Problems

IF 1.9 3区医学 Q2 PSYCHOLOGY, EDUCATIONAL

Journal of Applied Research in Intellectual Disabilities Pub Date : 2025-07-22 DOI:10.1111/jar.70103

Kasey Fullwood, Andrew Collaro, Lachlan Power, Jasneek Chawla

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Abstract

Introduction

Children with Down Syndrome are more likely to experience sleep issues throughout their life compared to typically developing children. Sleep difficulties also affect caregivers, who are at increased risk of sleep disturbances, mood disturbances and poorer wellbeing. However, the impact of poor sleep in this cohort of children on their caregivers is not widely understood.

Method

This study assessed the quality of life and mental health in 26 caregivers of children with Down Syndrome and sleep problems through two self-reporting questionnaires.

Results

Results showed caregivers had significantly lower quality of life (QoL) and higher stress scores compared to population norms. A decrease in psychological and physical health scores was associated with higher odds of depression. Similarly, a reduced physical and social health increased the odds of experiencing stress by 50%.

Conclusion

These findings suggest this cohort of families may benefit from increased psychosocial support when addressing sleep problems.

Abstract Image

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唐氏综合症和睡眠问题儿童照顾者的生活质量和心理健康

与正常发育的儿童相比，患有唐氏综合症的儿童一生中更有可能经历睡眠问题。睡眠困难也会影响到护理人员，他们患睡眠障碍、情绪障碍和健康状况不佳的风险更高。然而，这组儿童睡眠不足对他们的照顾者的影响还没有得到广泛的了解。方法采用两份自述问卷对26名唐氏综合征伴睡眠儿童的照顾者的生活质量和心理健康状况进行评估。结果护理人员的生活质量（QoL）明显低于正常人群，压力得分明显高于正常人群。心理和身体健康得分的下降与抑郁的可能性增加有关。同样，身体和社会健康状况的下降会使经历压力的几率增加50%。这些发现表明，在解决睡眠问题时，这组家庭可能受益于增加的社会心理支持。

本文章由计算机程序翻译，如有差异，请以英文原文为准。

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来源期刊

Journal of Applied Research in Intellectual Disabilities Multiple-

CiteScore

4.70

自引率

12.50%

发文量

期刊介绍： JARID is an international, peer-reviewed journal which draws together findings derived from original applied research in intellectual disabilities. The journal is an important forum for the dissemination of ideas to promote valued lifestyles for people with intellectual disabilities. It reports on research from the UK and overseas by authors from all relevant professional disciplines. It is aimed at an international, multi-disciplinary readership. Topics covered include community living, quality of life, challenging behaviour, communication, sexuality, medication, ageing, supported employment, family issues, mental health, physical health, autism, economic issues, social networks, staff stress, staff training, epidemiology and service provision.