Alopecia Areata: Impact on Patients' Quality of Life and Disease Perception: A Survey-Based Study.

IF 3.5 4区 医学 Q1 DERMATOLOGY
Christian Vestergaard, Daniel de la Rosa Carrillo, Randeep Mandla, Anne Grete Frøstrup, Susanne T Gren, Petri Vänni, Anna-Kaisa Asikainen, Kristian Kofoed, Cato Mørk
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Abstract

Alopecia areata significantly impacts patients' emotional and psychosocial well-being. This survey investigated patients' perspectives on disease severity and its impact on quality of life. The study evaluated whether disease assessment tools (Severity of Alopecia Tool, Dermatology Life Quality Index, and Patient Unique Stigmatization Holistic tool in dermatology) reflect patients' perceptions of their condition. The study was conducted as an anonymous social media survey in Norway and Denmark. The questionnaire was divided into 3 main sections: (i) demographics and disease characteristics; (ii) disease severity and QoL measures; and (iii) patient perception and psychosocial impact. A total of 360 individuals participated in the survey reporting alopecia areata as mild (15%), moderate (29%), or severe (58%). Some 61% reported alopecia areata to interfere with their daily or weekly activities. All disease assessment tools demonstrated an age-dependent pattern, where scores were highest in the youngest (< 30 years) responder group. The relationship between Dermatology Life Quality Index and Severity of Alopecia Tool scores was found to be weak (R-squared = 0.08). Similarly, the correlation between Dermatology Life Quality Index and self-reported disease severity was also weak (R-squared = 0.136). This study demonstrates that there is a clear need for the development of more comprehensive, validated, and patient-centred assessment tools that can accurately reflect the physical, emotional, psychological, and social challenges faced by individuals with alopecia areata.

斑秃:对患者生活质量和疾病认知的影响:一项基于调查的研究。
斑秃显著影响患者的情绪和心理健康。本调查调查了患者对疾病严重程度及其对生活质量的影响的看法。该研究评估了疾病评估工具(脱发严重程度工具、皮肤病生活质量指数和皮肤病患者独特污名化整体工具)是否反映了患者对其病情的看法。这项研究是在挪威和丹麦进行的一项匿名社交媒体调查。问卷分为3个主要部分:(i)人口统计学和疾病特征;(ii)疾病严重程度和生活质量指标;(三)患者感知和心理社会影响。共有360人参与调查,报告斑秃为轻度(15%)、中度(29%)或重度(58%)。约61%的人表示,斑秃影响了他们的日常或每周活动。所有疾病评估工具都显示出年龄依赖模式,其中年龄最小(
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来源期刊
Acta dermato-venereologica
Acta dermato-venereologica 医学-皮肤病学
CiteScore
4.90
自引率
2.80%
发文量
210
审稿时长
6-12 weeks
期刊介绍: Acta Dermato-Venereologica publishes high-quality manuscripts in English in the field of Dermatology and Venereology, dealing with new observations on basic dermatological and venereological research, as well as clinical investigations. Each volume also features a number of Review articles in special areas, as well as short Letters to the Editor to stimulate debate and to disseminate important clinical observations. Acta Dermato-Venereologica has rapid publication times and is amply illustrated with a large number of colour photographs.
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