After the earthquake: Unmet needs in people with cystic fibrosis in Turkiye- multicenter study.

IF 5.4 2区 医学 Q1 RESPIRATORY SYSTEM
Seyda Karabulut, Velat Sen, Beste Özsezen, Ali Özdemir, Melih Hangül, Suat Savas, Hadice Selimoğlu Sen, Gaye Inal, Huseyin Arslan, Mahir Serbes, Pelin Asfuroglu, Ezgi Cay, Erdem Topal, Neval Metin Çakar, Almala Pınar Ergenekon, Ela Erdem Eralp, Sedat Oktem, Zeynep Seda Uyan, Fazilet Karakoc, Bulent Karadag, Yasemin Gokdemir
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引用次数: 0

Abstract

Background: We aimed to assess unmet needs of pwCF in the earthquake zone by income level.

Methods: Following the February 6, 2023 Earthquake in Turkiye, the shorter version of the 'Your Current Life Situation' (YCLS) survey was adapted for post-earthquake conditions. The adapted YCLS was administered through face-to-face interviews at participants in seven earthquake-affected provinces to determine the insecurity areas and unmet needs in pwCF. Parents completed the survey for those pwCF under 18 years old; those over 18 completed it themselves.

Results: Among 255 participants, 91.7% (n=234) had incomes below the poverty threshold and 71.8% (n=183) below the hunger threshold. Post-earthquake, 69% (n=176) lived in overcrowded conditions and 37.6% (n=96) relocated to temporary housing. Under these challenging circumstances, 34.5% (n=88) of pwCF experienced disruptions in routine visits, and 20.8% (n=53) reported disruption in daily CF care routine. Financial and food insecurities were prevalent, with 77.3% (n=197) and 53.3% (n=136) of participants affected, respectively. The potential impact of earthquake-induced relocation on the participants' insecurity status was analyzed. Among those who relocated, financial, transportation, and housing insecurity appeared to be more prevalent (p<0.001).

Conclusion: This is the first study to analyze association between income level and unmet needs among pwCF living in earthquake-affected zone. The study revealed significant financial and food insecurity among pwCF in these areas. The findings emphasize the need for disaster-specific emergency action plans to address these vulnerabilities, ensuring access to healthcare and basic needs during crises.

地震后:土耳其囊性纤维化患者未满足的需求-多中心研究。
背景:我们的目的是根据收入水平来评估震区未满足的pwCF需求。方法:在2023年2月6日土耳其地震之后,“你目前的生活状况”(YCLS)调查的简短版本适用于地震后的情况。通过对七个受地震影响省份的参与者进行面对面访谈,以确定pwCF的不安全地区和未满足的需求。家长为未满18岁的残疾儿童填写问卷;18岁以上的学生自己完成。结果:在255名参与者中,91.7% (n=234)的收入低于贫困线,71.8% (n=183)的收入低于饥饿门槛。震后,69% (n=176)的人居住在拥挤的环境中,37.6% (n=96)的人搬迁到临时住房。在这些具有挑战性的情况下,34.5% (n=88)的pwCF患者在常规就诊中出现中断,20.8% (n=53)的患者报告在日常CF护理中出现中断。经济和粮食不安全普遍存在,分别有77.3% (n=197)和53.3% (n=136)的参与者受到影响。分析了地震搬迁对参与者不安全状态的潜在影响。在重新安置的人群中,经济、交通和住房不安全感似乎更为普遍。结论:这是第一个分析生活在地震灾区的pwCF中收入水平与未满足需求之间关系的研究。研究显示,这些地区的贫困家庭存在严重的财政和粮食不安全问题。调查结果强调,需要制定针对具体灾害的应急行动计划,以解决这些脆弱性,确保在危机期间获得医疗保健和满足基本需求。
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来源期刊
Journal of Cystic Fibrosis
Journal of Cystic Fibrosis 医学-呼吸系统
CiteScore
10.10
自引率
13.50%
发文量
1361
审稿时长
50 days
期刊介绍: The Journal of Cystic Fibrosis is the official journal of the European Cystic Fibrosis Society. The journal is devoted to promoting the research and treatment of cystic fibrosis. To this end the journal publishes original scientific articles, editorials, case reports, short communications and other information relevant to cystic fibrosis. The journal also publishes news and articles concerning the activities and policies of the ECFS as well as those of other societies related the ECFS.
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