Exploratory Qualitative Analysis of Needs Assessment and Obstacles Faced by Head and Neck Cancer Patients in Central Pennsylvania

Abstract

Background

We sought to identify the needs and obstacles in a rural head and neck cancer (HNC) patient population to address potential gaps in healthcare delivery and resources for this patient population.

Methods

Thirty-minute semi-structured interviews were conducted with 11 HNC patients. Verbatim transcripts were analyzed using thematic analysis. A conceptual framework adapted from the National Academies of Sciences, Engineering, and Medicine's five healthcare activities was used.

Results

Three themes emerged highlighting the importance of care coordination between treatment facilities, prioritizing quality of life metrics, and emphasizing patients' desire to be treated close to home.

Conclusion

This study identified several important themes that should be prioritized when implementing a successful multidisciplinary HNC center. Patients highly value communication among treatment teams, emphasizing the benefits of the role of a cancer nurse coordinator who can serve as the primary liaison for patients and ensure their needs are addressed.

Level of Evidence

6.