Gabriela Garcia de Carvalho Laguna, Isadora Bagues Rodrigues, Sara Emanuelle Dos Santos Neves, David Santos Libarino, Fernanda Beatriz Melo Maciel, Antônio Gonçalves Pessoa, Leticia Defensor da Silva Santos, Nilia Maria de Brito Lima Prado
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引用次数: 0
Abstract
Background: People with Autism Spectrum Disorder (ASD) experience phases of life beyond childhood, which increase the difficulties inherent in each cycle. In contrast, the scientific literature lacks broad reviews of developmental strategies regarding quality of life, even though ASD encompasses changes in social, communicative, and behavioral skills.
Objective: This study aimed to identify strategies for promoting and maintaining quality of life among adults diagnosed with autism.
Design and setting: This integrative review was conducted in Brazil.
Methods: This review searched the Scopus and Web of Science databases, from strategies that combined the descriptors ("Autism Spectrum Disorder"), ("Autism"), ("Aging"), and ("Quality of life"). Original studies with the full text available in English published between 2018 and 2023 were included, if they responded to the eligibility criteria.
Results: In total, 3,098 studies were identified, of which 44 were selected to compose the bibliographic sample of this review. The population sample included 184,653 participants diagnosed with ASD, aged on average 43.5 years old. The following were described for adults with autism: 1) cognitive aspects, 2) aspects related to suffering/mental illness, and 3) strategies to promote quality of life.
Conclusion: This research contributes to basic clinical practice and promotes responsible care that attends to the health needs of people with autism throughout life. Early interventions in autistic adults and the availability of support throughout life are essential for maintaining cognitive health and quality of life.
背景：患有自闭症谱系障碍（ASD）的人经历了童年以后的生活阶段，这增加了每个周期固有的困难。相比之下，科学文献缺乏关于生活质量的发展策略的广泛综述，尽管ASD包括社会、沟通和行为技能的变化。目的：本研究旨在确定促进和维持成年自闭症患者生活质量的策略。设计和环境：本综合评价在巴西进行。方法：本综述检索了Scopus和Web of Science数据库，从组合描述符（“Autism Spectrum Disorder”）、（“Autism”）、（“Aging”）和（“Quality of life”）的策略中检索。在2018年至2023年期间发表的具有英文全文的原始研究，如果符合资格标准，也包括在内。结果：共鉴定出3098篇研究，其中44篇入选本综述的文献样本。人口样本包括184,653名被诊断为自闭症谱系障碍的参与者，平均年龄为43.5岁。以下是对成年自闭症患者的描述：1)认知方面，2)与痛苦/精神疾病相关的方面，以及3)提高生活质量的策略。结论：本研究有助于基本的临床实践，促进负责任的护理，关注自闭症患者的终身健康需求。对成年自闭症患者进行早期干预，并在一生中获得支持，对于维持认知健康和生活质量至关重要。
期刊介绍：
Published bimonthly by the Associação Paulista de Medicina, the journal accepts articles in the fields of clinical health science (internal medicine, gynecology and obstetrics, mental health, surgery, pediatrics and public health). Articles will be accepted in the form of original articles (clinical trials, cohort, case-control, prevalence, incidence, accuracy and cost-effectiveness studies and systematic reviews with or without meta-analysis), narrative reviews of the literature, case reports, short communications and letters to the editor. Papers with a commercial objective will not be accepted.
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