A qualitative analysis of head and neck cancer patient's lived experience on their treatment journey in a single Irish institution.

Abstract

Introduction: Head and neck cancer can have a dramatic impact on the lives of patients. We wish to determine patients subjective preparedness for their treatment and to assess their service satisfaction provided by a Head and Neck Cancer Unit.

Methods: An observational cohort study of patients with a diagnosis of head and neck cancer was performed. This consisted of a 22-question survey of post-treatment patients. Patients prior to their clinic appointment were offered a feedback form for completion. The patients were aware that the clinician was blinded to completion of the form and advised that their feedback would not alter their future management.

Results: In total, 40 patients completed the questionnaire. Patients felt physically, mentally, nutritionally ready pre-treatment in 94%, 84.2% and 89% respectively. Forty per cent of respondents felt they would have benefited from the support of a psychologist. Regarding speech and swallow, 96% and 93% of patients felt they had adequate education of voice and swallow. 96% felt they had adequate post op support.

Conclusion: Patient-reported outcomes and feedback are essential to assess service provision and determine areas of insufficiency. One area of deficiency identified is regarding psychological support and we wish to highlight this insufficiency within our unit.