Psychosocial Distress, Depression and Burden Among Primary Caregivers of Children With Steroid-Sensitive Nephrotic Syndrome.

IF 1.7 4区医学 Q2 PEDIATRICS

Indian pediatrics Pub Date : 2025-07-08 DOI:10.1007/s13312-025-00132-3

Mritunjay Kumar, Rashmi Kumari, Rashmi Shukla, Namita Mishra, Amit Shukla, Bimlesh Prasad

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引用次数: 0

Abstract

Objective: This study assessed the psychological distress, depression, and burden among primary caregivers of children with steroid-sensitive nephrotic syndrome (SSNS) and explored its association with disease severity and patient/caregiver demographics.

Methods: Psychological assessment of primary caregivers of children aged 6 months to 15 years with SSNS was performed using General Health Questionnaire-12 for psychological distress, Beck Depression Inventory for depression, and Zarit Burden Interview-6 for caregiver burden.

Results: Out of 72 eligible caregivers, 60 were included. Severe depression, severe psychological distress, and significant caregiver burden were observed in 38.3%, 30%, and 61.7% of primary caregivers, respectively. Steroid-dependent nephrotic syndrome (SDNS) and disease duration over 24 months increased severe psychological distress. Risk factors for caregiver depression included child < 7 years, female gender, frequently relapsing nephrotic syndrome (FRNS)/SDNS, steroid use > 6 months, > 4 relapses, and prior hospitalization. Caregiver burden was higher in younger age, FRNS/SDNS, hospitalization, and lower middle socio-economic status.

Conclusion: Caregivers of children with SSNS experience significant psychological distress, depression, and financial burden.

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类固醇敏感肾病综合征儿童主要照顾者的心理社会困扰、抑郁和负担

目的：本研究评估类固醇敏感肾病综合征（SSNS）患儿的主要照顾者的心理困扰、抑郁和负担，并探讨其与疾病严重程度和患者/照顾者人口统计学的关系。方法：对6个月~ 15岁SSNS患儿的主要照顾者进行心理评估，采用《一般健康问卷-12》进行心理困扰评估，采用《Beck抑郁量表》进行抑郁评估，采用《Zarit Burden访谈-6》进行照顾者负担评估。结果：72名符合条件的护理人员中，有60人入选。重度抑郁、重度心理困扰和重度照顾者负担分别占主要照顾者的38.3%、30%和61.7%。类固醇依赖性肾病综合征（SDNS）和病程超过24个月增加了严重的心理困扰。照料者抑郁的危险因素包括儿童6个月、bb40复发和既往住院。照顾者负担在低龄、FRNS/SDNS、住院和中低社会经济地位人群中较高。结论：SSNS患儿的照顾者存在显著的心理困扰、抑郁和经济负担。

本文章由计算机程序翻译，如有差异，请以英文原文为准。

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来源期刊

Indian pediatrics 医学-小儿科

CiteScore

3.30

自引率

8.70%

发文量

344

审稿时长

3-8 weeks

期刊介绍： The general objective of Indian Pediatrics is "To promote the science and practice of Pediatrics." An important guiding principle has been the simultaneous need to inform, educate and entertain the target audience. The specific key objectives are: -To publish original, relevant, well researched peer reviewed articles on issues related to child health. -To provide continuing education to support informed clinical decisions and research. -To foster responsible and balanced debate on controversial issues that affect child health, including non-clinical areas such as medical education, ethics, law, environment and economics. -To achieve the highest level of ethical medical journalism and to produce a publication that is timely, credible and enjoyable to read.