Parent-reported Areas of Greatest Challenge for their ADHD and/or Autistic Children

IF 1.5 Q3 EDUCATION, SPECIAL

Advances in Neurodevelopmental Disorders Pub Date : 2024-09-11 DOI:10.1007/s41252-024-00417-x

Willow J. Sainsbury, Andrew J. O. Whitehouse, Kelly D. Carrasco, Hannah Waddington

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引用次数: 0

Abstract

Objectives

This study aimed to understand how parents describe the most challenging behaviors exhibited by their children diagnosed with autism and/or ADHD, how those behaviours impact their family, and whether challenges are directly related to the core characteristics of these conditions.

Methods

A total of 258 New Zealand parents of children diagnosed with autism (n = 98), ADHD (n = 85), or both conditions (n = 75) answered an open-ended question about what child behaviour(s) provide the most challenge for their child/family’s life. Responses were coded into 13 domains.

Results

The areas of greatest challenge fitted with the core characteristics of the respective diagnoses, but the co-occurring group favoured greater challenges in the autism domain. Emotional dysregulation challenges were substantial across all three groups. A significant predictor of parents reporting challenges in the autism and internalising domain was a higher age.

Conclusions

These results have the potential to inform more targeted supports for children and families by considering what is important to parents.

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家长报告的ADHD和/或自闭症儿童面临的最大挑战。

目的：本研究旨在了解父母如何描述被诊断为自闭症和/或ADHD的孩子表现出的最具挑战性的行为，这些行为如何影响他们的家庭，以及这些挑战是否与这些条件的核心特征直接相关。方法：共有258名新西兰父母，他们的孩子被诊断为自闭症（n = 98）、多动症（n = 85）或两种情况都有（n = 75），他们回答了一个开放式问题，即哪些儿童行为给他们的孩子/家庭生活带来了最大的挑战。回答被编码为13个领域。结果：最大的挑战领域符合各自诊断的核心特征，但共同发生组倾向于自闭症领域的更大挑战。在所有三组中，情绪失调挑战都很严重。父母报告自闭症和内化领域挑战的一个重要预测因素是年龄较大。结论：这些结果有可能通过考虑对父母来说什么是重要的，为儿童和家庭提供更有针对性的支持。补充信息：在线版本包含补充资料，提供地址为10.1007/s41252-024-00417-x。

本文章由计算机程序翻译，如有差异，请以英文原文为准。

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来源期刊

Advances in Neurodevelopmental Disorders Social Sciences-Social Sciences (miscellaneous)

CiteScore

2.10

自引率

0.00%

发文量

期刊介绍： Advances in Neurodevelopmental Disorders publishes high-quality research in the broad area of neurodevelopmental disorders across the lifespan. Study participants may include individuals with:Intellectual and developmental disabilitiesGlobal developmental delayCommunication disordersLanguage disordersSpeech sound disordersChildhood-onset fluency disorders (e.g., stuttering)Social (e.g., pragmatic) communication disordersUnspecified communication disordersAutism spectrum disorder (ASD)Attention-deficit/hyperactivity disorder (ADHD), specified and unspecifiedSpecific learning disordersMotor disordersDevelopmental coordination disordersStereotypic movement disorderTic disorders, specified and unspecifiedOther neurodevelopmental disorders, specified and unspecifiedPapers may also include studies of participants with neurodegenerative disorders that lead to a decline in intellectual functioning, including Alzheimer’s disease, amyotrophic lateral sclerosis, Creutzfeldt-Jakob disease, vascular dementia, Lewy body dementia, frontotemporal dementia, corticobasal degeneration, Huntington’s disease, and progressive supranuclear palsy. The journal includes empirical, theoretical and review papers on a large variety of issues, populations, and domains, including but not limited to: diagnosis; incidence and prevalence; and educational, pharmacological, behavioral and cognitive behavioral, mindfulness, and psychosocial interventions across the life span. Animal models of basic research that inform the understanding and treatment of neurodevelopmental disorders are also welcomed. The journal is multidisciplinary and multi-theoretical, and encourages research from multiple specialties in the social sciences using quantitative and mixed-method research methodologies.