The need to adapt after Alzheimer's disease diagnosis: Coping strategies used to maintain identity and quality of life.

IF 3.4 3区 医学 Q2 NEUROSCIENCES
Simone Gamm, Deborah Ummel, Nancy Vasil, Sébastien Grenier
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Abstract

BackgroundReceiving a diagnosis of a major neurocognitive disorder due to Alzheimer's disease (AD) brings with it the need to adjust to a new life situation. People with AD seek to (1) maintain emotionally positive goals in their current lives, and (2) use positive experiences from the past to create continuity in their lives, with the aim of maintaining their quality of life and gaining a sense of hope.ObjectiveThis research aims to explore the coping strategies and processes used following diagnosis.MethodAn exploratory qualitative design was implemented to study the different coping strategies used by ten people with AD, via semi-structured interviews. The transcribed data was subject to an interpretative phenomenological analysis.ResultsAll participants experienced unpleasant emotions following their diagnosis. Their coping process following two different trajectories: (1) adaptive coping strategies to gain resilience and hope to maintain meaning in their current lives; (2) less adaptive coping strategies essentially resulting in the denial of the diagnosis and withdrawal from social life.ConclusionsThis research makes it possible to identify possible intervention paths adapted to an individual's needs to help them move towards adaptive coping strategies.

阿尔茨海默病诊断后的适应需要:用于维持身份和生活质量的应对策略。
被诊断为阿尔茨海默病(AD)导致的严重神经认知障碍,需要适应新的生活环境。AD患者寻求(1)在当前生活中保持积极的情感目标,(2)利用过去的积极经验来创造生活的连续性,目的是维持他们的生活质量并获得希望感。目的探讨诊断后患者的应对策略和过程。方法采用探索性定性设计,通过半结构化访谈对10例AD患者的不同应对策略进行研究。对转录的数据进行解释性现象学分析。结果所有的参与者在诊断后都经历了不愉快的情绪。他们的应对过程遵循两个不同的轨迹:(1)适应性应对策略以获得弹性和希望维持当前生活的意义;(2)缺乏适应性的应对策略,本质上导致对诊断的否认和退出社会生活。结论:本研究可以确定适合个人需求的可能干预路径,帮助他们转向适应性应对策略。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
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来源期刊
Journal of Alzheimer's Disease
Journal of Alzheimer's Disease 医学-神经科学
CiteScore
6.40
自引率
7.50%
发文量
1327
审稿时长
2 months
期刊介绍: The Journal of Alzheimer''s Disease (JAD) is an international multidisciplinary journal to facilitate progress in understanding the etiology, pathogenesis, epidemiology, genetics, behavior, treatment and psychology of Alzheimer''s disease. The journal publishes research reports, reviews, short communications, hypotheses, ethics reviews, book reviews, and letters-to-the-editor. The journal is dedicated to providing an open forum for original research that will expedite our fundamental understanding of Alzheimer''s disease.
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