Three Years on From “Stay at Home”: Perspectives of People With Intellectual Disabilities About the Ongoing Impact of the COVID-19 Pandemic

IF 2.1 3区医学 Q2 PSYCHOLOGY, EDUCATIONAL

Journal of Applied Research in Intellectual Disabilities Pub Date : 2025-07-07 DOI:10.1111/jar.70076

Jodie Rawles, Sue Caton, Dawn Cavanagh, Chris Hatton, Richard P. Hastings, the Coronavirus and People with Learning Disabilities Study Team

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Abstract

Background

People with intellectual disabilities were disproportionately negatively affected during the COVID-19 pandemic, but there has been limited research about the perceived longer-term impact.

Methods

Data were collected through a two-stage narrative interview process with eight adults with intellectual disabilities. Participants told their storey about their lives at the time of the first lockdown in 2020, what their lives were like 3 years later, and what they hoped for the future. A second interview filled any gaps in the narrative. Data were analysed thematically.

Results

Four themes were identified: navigating disruptions to meaningful activities; unique challenges associated with residing in group-living environments; anger at the Government; barriers to moving forward.

Conclusions

The themes identified reflect powerful emotional memories of challenging experiences during the COVID-19 pandemic. Life continues to be difficult for many due to ongoing difficulties in getting the right support.

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“待在家里”三年：智障人士对2019冠状病毒病大流行持续影响的看法

在2019冠状病毒病大流行期间，智力残疾人士受到了不成比例的负面影响，但关于其长期影响的研究有限。方法采用两阶段叙述访谈法对8名成人智力障碍患者进行访谈。与会者讲述了他们在2020年第一次封锁时的生活故事，3年后的生活情况以及他们对未来的希望。第二次采访填补了叙述中的空白。数据按主题进行分析。结果确定了四个主题：导航中断到有意义的活动；与群体生活环境相关的独特挑战；对政府的愤怒；前进的障碍。确定的主题反映了对2019冠状病毒病大流行期间具有挑战性经历的强烈情感记忆。由于难以获得正确的支持，许多人的生活仍然很困难。

本文章由计算机程序翻译，如有差异，请以英文原文为准。

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来源期刊

Journal of Applied Research in Intellectual Disabilities Multiple-

CiteScore

4.70

自引率

12.50%

发文量

期刊介绍： JARID is an international, peer-reviewed journal which draws together findings derived from original applied research in intellectual disabilities. The journal is an important forum for the dissemination of ideas to promote valued lifestyles for people with intellectual disabilities. It reports on research from the UK and overseas by authors from all relevant professional disciplines. It is aimed at an international, multi-disciplinary readership. Topics covered include community living, quality of life, challenging behaviour, communication, sexuality, medication, ageing, supported employment, family issues, mental health, physical health, autism, economic issues, social networks, staff stress, staff training, epidemiology and service provision.