Facilitators and barriers to the adherence of physiotherapy clinic attendance and home programme by caregivers of children with cerebral palsy in Blantyre, Malawi.

Abstract

Introduction: Impairments caused by cerebral palsy (CP) restrict participation and function in activities of daily living (ADL) that leave children with CP vulnerable and dependent on others to perform basic daily needs.

Method: The study explored caregivers' perceived barriers and facilitators to attending CP clinic sessions at Queen Elizabeth Central Hospital (QECH) and Feed the Children and completing a home exercise programme in Blantyre, Malawi, using qualitative descriptive research.

Results: Facilitators included issues relating to (1) religious factors, (2) positive change in the child's condition, and (3) the support that the therapist provided. The major themes perceived as barriers included (1) poor economic status, (2) lack of time, (3) lack of family support, and (4) discrimination.

Conclusion: We have identified several strategies to improve physiotherapy support for caregivers of children with cerebral palsy in Blantyre, Malawi. Therapists should establish rapport and motivate caregivers, and the government should expand the rehabilitation workforce and implement community advocacy programmes that reduce stigma.