Perspectives of veterans with spinal cord injuries and disorders and their providers on impacted healthcare during the COVID-19 pandemic.

IF 1.5 4区 医学 Q3 CLINICAL NEUROLOGY
Lance Washington, Marinella Galea, Steven Knezevic, B Jenny Kiratli, Ona Bloom, Jennifer Sippel, Ann M Spungen, Doug Ota, Andrea K Finlay
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引用次数: 0

Abstract

Objective: Veterans with spinal cord injuries and disorders (SCI/D) reported experiencing challenges from disrupted and deferred health services during the COVID-19 pandemic, including disrupted care coordination, supply chain, and essential services, such as wheelchair repair. This study used qualitative methods to examine the perspectives of Veterans with SCI/D (VSCI/D) and SCI/D healthcare providers on how the COVID-19 pandemic impacted health services.

Design/setting/participants: Virtual focus groups were conducted with both VSCI/D who received care at the Veterans Health Administration (VHA) and VHA SCI/D providers who provided services for VSCI/D between March 2020 and March 2022.

Outcome measures: Topics assessed COVID-19 pandemic experiences including healthcare access and needs, Veteran and provider perspectives of Veterans' experiences during the pandemic, Veterans' coping strategies, and future emergency preparedness strategies.

Results: There were 11 Veterans and 11 providers who participated in focus groups. Five themes were identified: (1) challenges with healthcare, care coordination, and homecare; (2) supply chain issues; (3) adapting to virtual platforms for support and therapy; (4) communication and reliable information about COVID-19; and (5) challenges with isolation and limited independence.

Conclusion: This study highlights challenges VSCI/D faced during the COVID-19 pandemic. Recommendations to enhance VHA support for VSCI/D during future emergencies include strengthening home care support, system level changes to supply management to be more flexible, and interdisciplinary town halls to transparently share comprehensive information. Virtual peer support groups may address challenges with isolation and limited independence.

COVID-19大流行期间脊髓损伤和疾病退伍军人及其提供者对受影响医疗保健的看法
目的:脊髓损伤和疾病(SCI/D)退伍军人报告说,在2019冠状病毒病大流行期间,他们遇到了医疗服务中断和延迟的挑战,包括护理协调、供应链和轮椅维修等基本服务中断。本研究采用定性方法,考察了脊髓损伤退伍军人(VSCI/D)和脊髓损伤医疗服务提供者对COVID-19大流行如何影响医疗服务的看法。设计/设置/参与者:在2020年3月至2022年3月期间,在退伍军人健康管理局(VHA)接受治疗的VSCI/D和为VSCI/D提供服务的VHA SCI/D提供者进行了虚拟焦点小组研究。结果衡量指标:评估了COVID-19大流行经验的主题,包括医疗保健获取和需求、退伍军人和提供者对退伍军人在大流行期间经历的看法、退伍军人的应对策略以及未来的应急准备策略。结果:11名退伍军人和11名医疗服务提供者参加了焦点小组。确定了五个主题:(1)保健、护理协调和家庭护理方面的挑战;(2)供应链问题;(3)适应虚拟平台的支持和治疗;(4) COVID-19的沟通和可靠信息;(5)孤立和有限独立性的挑战。结论:本研究突出了VSCI/D在COVID-19大流行期间面临的挑战。建议在未来紧急情况下加强VHA对VSCI/D的支持,包括加强家庭护理支持,系统层面的改革以使供应管理更加灵活,以及跨学科的市政厅透明地共享全面信息。虚拟同伴支持小组可以应对孤立和有限独立性的挑战。
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来源期刊
Journal of Spinal Cord Medicine
Journal of Spinal Cord Medicine 医学-临床神经学
CiteScore
4.20
自引率
5.90%
发文量
101
审稿时长
6-12 weeks
期刊介绍: For more than three decades, The Journal of Spinal Cord Medicine has reflected the evolution of the field of spinal cord medicine. From its inception as a newsletter for physicians striving to provide the best of care, JSCM has matured into an international journal that serves professionals from all disciplines—medicine, nursing, therapy, engineering, psychology and social work.
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