Realising realistic medicine by enhancing patient-centred care: The Scottish Photobiology Service's approach to engaging patients with photosensitivity disorders.
Marese Kathleen O'Reilly, Stephanie Logan, Susan Yule, Rodney Mountain, Ewan Eadie, Robert Dawe, Sally Ibbotson
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引用次数: 0
Abstract
The Scottish Photobiology Service (SPS), hosted in the Photobiology Unit at Ninewells Hospital, Dundee, celebrated its 50th anniversary in 2023. Dedicated to providing diagnostic and therapeutic services for individuals with cutaneous photosensitivity disorders, the SPS has consistently sought to improve patient care. In 2015, the Chief Medical Officer for Scotland, published a national report entitled 'Realistic Medicine', which challenged medical practitioners to improve patient care through the development of personalised approaches, with patients placed at the centre of their care. In 2019, the SPS initiated a patient engagement programme aimed at better understanding the needs of patients with photosensitivity conditions, underpinning the objectives of the Realistic Medicine concept. This article outlines the development, implementation and outcomes of this initiative, which has become a core function of the service. Through ongoing collaboration with patients and staff, the programme has informed service improvements, addressed key issues such as referral delays, peer support and educational resources, and fostered an inclusive approach to care.
期刊介绍:
The Journal of the Royal College of Physicians of Edinburgh (JRCPE) is the College’s quarterly, peer-reviewed journal, with an international circulation of 8,000. It has three main emphases – clinical medicine, education and medical history. The online JRCPE provides full access to the contents of the print journal and has a number of additional features including advance online publication of recently accepted papers, an online archive, online-only papers, online symposia abstracts, and a series of topic-specific supplements, primarily based on the College’s consensus conferences.