Jessica Kersey PhD, OTR/L , Wendy Wang BS , Noemi Rojas Serrano BS , Maureen Cunningham CFRE , Flora M. Hammond MD, PhD , John D. Corrigan PhD, ABPP
{"title":"Qualitative Examination of Chronic Care Needs of Individuals With Traumatic Brain Injury","authors":"Jessica Kersey PhD, OTR/L , Wendy Wang BS , Noemi Rojas Serrano BS , Maureen Cunningham CFRE , Flora M. Hammond MD, PhD , John D. Corrigan PhD, ABPP","doi":"10.1016/j.apmr.2025.06.012","DOIUrl":null,"url":null,"abstract":"<div><h3>Objective</h3><div>To examine the chronic care needs of patients with traumatic brain injury (TBI) and development of a Chronic Care Model for TBI.</div></div><div><h3>Design</h3><div>Focus groups to examine unmet needs, priorities for long-term support, and recommendations for chronic care management of TBI. We used thematic analysis to generate themes describing key concepts and synthesized needs to support chronic care management of TBI.</div></div><div><h3>Setting</h3><div>Brain injury support groups, community settings, and Zoom.</div></div><div><h3>Participants</h3><div>47 participants: people with chronic TBI (>6mo post-TBI; n=25), their family members (n=16), and TBI community service providers (n=6).</div></div><div><h3>Interventions</h3><div>Not applicable.</div></div><div><h3>Main Outcome Measures</h3><div>Not applicable.</div></div><div><h3>Results</h3><div>We found that people with TBI, their family members, and their providers are all unprepared to manage TBI as a chronic condition. Although participants identified numerous valuable services within their communities, there are extensive barriers to accessing them. There are also unmet needs for community and social participation, mental health, and family support.</div></div><div><h3>Conclusions</h3><div>To successfully implement a chronic care approach to TBI management, we must reduce the barriers to accessing services and resources for people with TBI. We must implement stronger initial brain injury education practices, develop structures to support the transition from health systems to community levels of care and provide sustained access to therapy services, family-caregiver support, and employment advocacy and support.</div></div>","PeriodicalId":8313,"journal":{"name":"Archives of physical medicine and rehabilitation","volume":"106 10","pages":"Pages 1548-1556"},"PeriodicalIF":3.7000,"publicationDate":"2025-10-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":"0","resultStr":null,"platform":"Semanticscholar","paperid":null,"PeriodicalName":"Archives of physical medicine and rehabilitation","FirstCategoryId":"3","ListUrlMain":"https://www.sciencedirect.com/science/article/pii/S0003999325007713","RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":null,"EPubDate":"","PubModel":"","JCR":"Q1","JCRName":"REHABILITATION","Score":null,"Total":0}
引用次数: 0
Abstract
Objective
To examine the chronic care needs of patients with traumatic brain injury (TBI) and development of a Chronic Care Model for TBI.
Design
Focus groups to examine unmet needs, priorities for long-term support, and recommendations for chronic care management of TBI. We used thematic analysis to generate themes describing key concepts and synthesized needs to support chronic care management of TBI.
Setting
Brain injury support groups, community settings, and Zoom.
Participants
47 participants: people with chronic TBI (>6mo post-TBI; n=25), their family members (n=16), and TBI community service providers (n=6).
Interventions
Not applicable.
Main Outcome Measures
Not applicable.
Results
We found that people with TBI, their family members, and their providers are all unprepared to manage TBI as a chronic condition. Although participants identified numerous valuable services within their communities, there are extensive barriers to accessing them. There are also unmet needs for community and social participation, mental health, and family support.
Conclusions
To successfully implement a chronic care approach to TBI management, we must reduce the barriers to accessing services and resources for people with TBI. We must implement stronger initial brain injury education practices, develop structures to support the transition from health systems to community levels of care and provide sustained access to therapy services, family-caregiver support, and employment advocacy and support.
期刊介绍:
The Archives of Physical Medicine and Rehabilitation publishes original, peer-reviewed research and clinical reports on important trends and developments in physical medicine and rehabilitation and related fields. This international journal brings researchers and clinicians authoritative information on the therapeutic utilization of physical, behavioral and pharmaceutical agents in providing comprehensive care for individuals with chronic illness and disabilities.
Archives began publication in 1920, publishes monthly, and is the official journal of the American Congress of Rehabilitation Medicine. Its papers are cited more often than any other rehabilitation journal.