Shravan Asthana, Muhammad T. Hassan, Osama Hassan, Sawsan Alkhalili, Ariz Keshwani, Fernando Gonzalez, Taher Valika
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引用次数: 0
Abstract
Background
Social determinants of health (SDOH) significantly influence the well-being of families in pediatric aerodigestive programs, affecting engagement with care, adherence to treatment, and overall health outcomes. This study evaluated the impact of SDOH and the effectiveness of social work support for families within a multidisciplinary aerodigestive program.
Methods
A mixed-methods study was conducted at Ann & Robert H. Lurie Children's Hospital of Chicago using a convenience sample of patients discharged between July and August 2023. Data were collected through a condensed SDOH screening questionnaire, qualitative interviews, social work documentation, and chart reviews. Thematic analysis was used to identify recurring challenges and assess social work interventions.
Results
Among 17 interviewed families, the majority of patients were Black (47.1 %) and male (56.3 %), with a mean age of 9.5 years. Key SDOH challenges included financial strain (62.5 %), caregiver stress (37.5 %), transportation barriers (31.3 %), food insecurity (25 %), and housing instability (12.5 %). Four major themes emerged: insufficient post-discharge support, the value of peer-family connections, the need for coordinated care, and the importance of aerodigestive-specific social work support.
Conclusions
Families in pediatric aerodigestive programs face substantial SDOH-related barriers. Strengthening relationship-centered care, enhancing care coordination, and embedding longitudinal, program-specific social work support may improve outcomes and reduce caregiver burden.
期刊介绍:
The purpose of the International Journal of Pediatric Otorhinolaryngology is to concentrate and disseminate information concerning prevention, cure and care of otorhinolaryngological disorders in infants and children due to developmental, degenerative, infectious, neoplastic, traumatic, social, psychiatric and economic causes. The Journal provides a medium for clinical and basic contributions in all of the areas of pediatric otorhinolaryngology. This includes medical and surgical otology, bronchoesophagology, laryngology, rhinology, diseases of the head and neck, and disorders of communication, including voice, speech and language disorders.